CLL Specialist in California: CLL Specialist in... - CLL Support

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CLL Specialist in California

Rivergoddess profile image
34 Replies

CLL Specialist in California needed. I live in Northern California so I’m looking for the closest one possible. Thank you and blessings.

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Rivergoddess profile image
Rivergoddess
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34 Replies
cllady01 profile image
cllady01Former Volunteer

Here is the link to CLL Society --look for menu at bottom of into page.

cllsociety.org, choose "CLL Doctors"

Jogging4life profile image
Jogging4life

Dr Kao is excellent! Trained at Stanford

Her office is in San Mateo county.

Jcalichi profile image
Jcalichi

Dr Bita Fakhri is the top expert at UCSF — cutting edge researcher and excellent clinician. I’m early in my CLL journey but couldn’t be more pleased. Great bedside manner too. Where in Northern California are you?

Rivergoddess profile image
Rivergoddess in reply toJcalichi

Thank you. I live in Penn Valley, about 1.5 hours north of Sacramento in the Sierra foothills. And you?

Does this doctor take Medicare?

Kuna123 profile image
Kuna123

I’m seeing Dr. Stephen Coutre.

He’s a CLL specialist at Stanford

Rivergoddess profile image
Rivergoddess in reply toKuna123

Thank you. Does he take Medicare?Where do you live?

kc1953 profile image
kc1953 in reply toRivergoddess

I’m sure Stanford takes Medicare. I’m sure the majority of Dr. Coutre’s patients are on Medicare.

Kuna123 profile image
Kuna123 in reply toRivergoddess

I’m sure he takes Medicare. I live in Pleasant Hill.

kc1953 profile image
kc1953

Dr. Steven Coutre at Stanford. One of the top CLL Specialists and principle investigator for many novel agent clinical trials.

haposwald profile image
haposwald

I live in Citrus Heights 1/2 hour north of Sacramento I’ve got a great hematologist in Rocklin! I as well wanted to see a specialist. But the logistics for me I felt better to spend my time living instead of the travel with our lovely Bay Area traffic and everything along with it! If you need a second opinion I’d gladly give you my Hemotolgist’s name and number ! Stanford is the place to go!

Rivergoddess profile image
Rivergoddess in reply tohaposwald

Thank you. Please do give me his name just in case I need a second opinion. Have you heard anything about doctors at UC Davis?

haposwald profile image
haposwald in reply toRivergoddess

916-409-1400 dr Gurvinder Shaheed mercy med group, hematologist oncologist. I could not be happier as he listens to my thoughts and concerns and gives me the time needed to discuss my thoughts and any issues I might have being a AD (almost Doctor). Hope this helps and there is the leukemia and lymphoma society here in Sac if you need anything else contact me on FB if you’d like

Rivergoddess profile image
Rivergoddess in reply tohaposwald

Thank you what is your Facebook name? <<FB name edited out by admin to protect your privacy>>

haposwald profile image
haposwald in reply toRivergoddess

<<FB name edited out by admin to protect your privacy>>

Newdawn profile image
NewdawnAdministrator in reply toRivergoddess

Please exchange names privately by pm. This is an open post so very unwise to give out your actual name on here. I would advise you to edit them out.

Regards,

Newdawn

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AussieNeilPartnerAdministrator in reply toNewdawn

Rivergoddess and haposwald , this is how you securely send and view private messages in this community when you wish to exchange personally identifying information:

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Justasheet1 profile image
Justasheet1

I know nothing about the logistics of travel in California but UCSD has both Dr Kipps and Dr Choi. I would travel hours to see either of them however Dr Coutre is exceptional as well from what I’ve heard too.

Jeff

Rivergoddess profile image
Rivergoddess in reply toJustasheet1

Thank you Jeff. Do they take medicare?

Justasheet1 profile image
Justasheet1 in reply toRivergoddess

I’m not sure but being in California, I would assume that they do.

Waligunda profile image
Waligunda in reply toRivergoddess

Yes, Dr. Kipps and Dr. Choi take Medicare. They are both wonderful and kept me alive for 20 years. Am now on Acalabutrinib with “spectacular” results as Dr. Kipps says.

All the best.

Mwagner profile image
Mwagner

I live in the East Bay and go to Diablo Oncology in Pleasant Hill

ddmo profile image
ddmo in reply toMwagner

Can I ask what doctor you are seeing at Diablo Valley Oncology?

Mwagner profile image
Mwagner in reply toddmo

Dr Robles, I’ve been seeing him every six months since he diagnosed that I have CLL. A nice man, good doctor. I recommend him.

AuntHelen profile image
AuntHelen

My husband goes to Stanford and is on Medicare.

Rivergoddess profile image
Rivergoddess in reply toAuntHelen

Thank you. Does he have a CLL specialist? Who?

AuntHelen profile image
AuntHelen in reply toRivergoddess

He has CLL/SLL. He sees Dr. Alexander Pham ( hematologist ) at the Los Gatos location.

Dr Shane Dormady at the El Camino Hospital Cancer Center in Mountain View CA

Rivergoddess profile image
Rivergoddess

Thank you. Does he take Medicare?

Smakwater profile image
Smakwater

Top Guns,

Southern Cal:

DR. Susan O'Brien - Orange County

Dr. Thomas James Kipps - San Diego

Not far North:

Dr Jeff P Sharman - Willamette Valley Cancer Institute, Eugene Oregon

JM

17Pisme profile image
17Pisme

First and foremost see a CLL specialist not just an oncologist. You need an expert and there are few if any better than Susan O'Brien, now at Irvine, formally at MDA. SWA tickets are cheap.

Sunnyoutlook profile image
Sunnyoutlook

I live in Humboldt County & drive 300 miles to Eugene, OR to see Dr. Sharman. I'm in his debulking trial of obinutuzumab/venetoclax. I prefer the drive there vs driving to the Bay Area.

Hoffy profile image
Hoffy

Dr Tate Shannifeld (sp?) at Stanford is very good and a CLL expert.

Be well,

Hoffy

LIvingWell profile image
LIvingWell

I'm also with Dr. Coutre at Stanford. I was told by my original Hematologist that he was the expert in the Bay Area.

migirlusa profile image
migirlusa

I go to Dr. Choi at UCSD. He is wonderful. I fly to San Diego once a year to see him. If I have a question later, I send him a message and he gets right back to me.

Good luck.

Pam

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