Lymphedema and CLL

[luvemwildcats]

Has anyone with a diagnosis of CLL had/have lymphedema?

[Hidden]

i searched this site-search is in the upper right corner of this page-43 posts with lymphedema in them

[AussieNeil Partner Administrator in reply to Hidden]

Only 4 of those posts are from our community members, indicating it's not a common problem with CLL:

healthunlocked.com/cllsuppo...

To restrict searches to our community, which also returns links to locked posts, you have to search from this community's home or posts pages.

The home page is accessed via the hub:

healthunlocked.com/cllsupport

healthunlocked.com/cllsuppo...

Neil

[cllady01 Former Volunteer]

luvemwildcats, do you have lymphedema with CLL ?

[luvemwildcats in reply to cllady01]

Yes, I was diagnosed over 10 years ago and have been on W/W during this time. I have had many problems and hospitalizations in the interim, but this edema is really giving me the blues to say the least. I have had no treatment and without a drastic prognosis like complete remission or cure I doubt that I will. I am currently being treated with lasix and what are called unna boots. The unna boots have been applied during the last month being changed twice a week. They nor the lasix are giving me any relief at all. My skin in my legs and torso area is so taut that I feel bruised all over those areas. I would appreciate any replies or thoughts anyone may have. Thanks so much.

[cllady01 Former Volunteer in reply to luvemwildcats]

I am so sorry for your painful situation and those words are inadequate in the face of you discomfort.

I have never seen anyone indicating lymphedema as being caused by CLL and, there are several causes for lymphedema, so you may be dealing with a secondary disease/disfunction.

What have you had hospitalizations for? What does your CLL Dr. say in regard to your lymphedema. Is there any thought that CLL treatment can be helpful in this situation, or is it unrelated and therefore needing a different approach than CLL.