Anyone have experience with Kombucha? - CLL Support

CLL Support

23,093 members39,662 posts

Anyone have experience with Kombucha?

barbkerm profile image
3 Replies

Anyone have experience with Kombucha?

An Essential Oils friend is touting the benefits of it (fermented tea).

Written by
barbkerm profile image
barbkerm
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Cllcanada profile image
CllcanadaTop Poster CURE Hero

Never heard of any benefit in CLL, its a mushroom fungi and some fungi can stimulate B cell receptors in CLL... not what you want.

Discuss it with you doctor...

mayoclinic.org/healthy-life...

en.m.wikipedia.org/wiki/Kom...

~chris

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

Sometimes the worst advice we get is from well meaning friends. I thank them and say I will mention their advice to my doctor. Sometimes that "mentioning" is along the lines of "Can you believe..... ". One friend I had to let go of, because she could not let go of pushing her cure. Interesting that she just happened to be a distributor for the product.

AussieNeil profile image
AussieNeilPartnerAdministrator

I enjoyed making it at home for quite a while before I was diagnosed with CLL/SLL, so it didn't prevent me from developing CLL/SLL. :( I tried a commercial drink version recently and it wasn't as nice as the home brew. (I also wasn't popular for repurposing a slow cooker bowl for making it - which resulted in the bowl being unusable for it's original purpose).

I wouldn't recommend it if you have CLL, due to the risk of bacterial contamination and the lack of control over the fungal, etc ingredients of the "mushroom". To make a new batch, you make up a big bowl of sugar sweetened tea, let it cool and then float the "mushroom" on the tea, covering the bowl with a cloth and leaving it in a warm location, so any bacterial contamination has a lovely medium in which to grow. When the "mushroom" gets too large, you split it in half - another opportunity for contamination of the brew.

RationalWiki has an entry in it, which includes a list of better live cultures to play with: rationalwiki.org/wiki/Kombucha

Neil

Not what you're looking for?

You may also like...

Anyone have experience with Venclexta capped at 200 mg?

I am a 62 yr old woman and will be starting Obinutuzumab in 2 days with Venclexta added my 4th...

Experience with Evusheld

Just wondering. Has anyone had a breakthrough infection after receiving Evusheld?

Experience with Fludarabine & Rituximab?

Hi, My mom (now 62 yrs old) was diagnosed with CLL about 5+ yrs ago, and her doctor recently told...

Any experience with norovirus?

Hello All! I am one year off trial drugs and my MRD remains undetectable. In the fall of 2020 I...

HAS ANYONE ON THE PAGE HAD EXPERIENCE WITH ANTI DEPRESSANTS?

Due to additional stress (hubby having to have treatment for prostate cancer) plus a bad time while...