Anyone have experience with Kombucha? - CLL Support

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Anyone have experience with Kombucha?

barbkerm profile image
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Anyone have experience with Kombucha?

An Essential Oils friend is touting the benefits of it (fermented tea).

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barbkerm
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Cllcanada profile image
CllcanadaTop Poster CURE Hero

Never heard of any benefit in CLL, its a mushroom fungi and some fungi can stimulate B cell receptors in CLL... not what you want.

Discuss it with you doctor...

mayoclinic.org/healthy-life...

en.m.wikipedia.org/wiki/Kom...

~chris

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

Sometimes the worst advice we get is from well meaning friends. I thank them and say I will mention their advice to my doctor. Sometimes that "mentioning" is along the lines of "Can you believe..... ". One friend I had to let go of, because she could not let go of pushing her cure. Interesting that she just happened to be a distributor for the product.

AussieNeil profile image
AussieNeilAdministrator

I enjoyed making it at home for quite a while before I was diagnosed with CLL/SLL, so it didn't prevent me from developing CLL/SLL. :( I tried a commercial drink version recently and it wasn't as nice as the home brew. (I also wasn't popular for repurposing a slow cooker bowl for making it - which resulted in the bowl being unusable for it's original purpose).

I wouldn't recommend it if you have CLL, due to the risk of bacterial contamination and the lack of control over the fungal, etc ingredients of the "mushroom". To make a new batch, you make up a big bowl of sugar sweetened tea, let it cool and then float the "mushroom" on the tea, covering the bowl with a cloth and leaving it in a warm location, so any bacterial contamination has a lovely medium in which to grow. When the "mushroom" gets too large, you split it in half - another opportunity for contamination of the brew.

RationalWiki has an entry in it, which includes a list of better live cultures to play with: rationalwiki.org/wiki/Kombucha

Neil

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