TP53/Ibruvica/herpes : I’m on ibruvica since dec... - CLL Support

CLL Support

23,337 members40,042 posts

TP53/Ibruvica/herpes

Deta1961 profile image
6 Replies

I’m on ibruvica since dec 2017 and i’ve a TP53 mutation... a lot of infeccions almost every month and right now a cronic herpes ... Anyone? Horrible ...

Written by
Deta1961 profile image
Deta1961
To view profiles and participate in discussions please or .
6 Replies
81ue profile image
81ue

I don't currently have issues with imbruvica (on 560 mg tablet)) and my tp53 mutation, the dr. gave me famciclovir and told me to take 1500 mg and then three days later again 1500 mg if needed to deal with a virus. Look up that on internet and check with your dr. if that or something similar might help you put down the virus.

cllady01 profile image
cllady01Former Volunteer

Deta, you need to call your CLL Dr. Your immune system is weakened, if you are continually getting infections.

There are medications as suggested by 81ue--

Famciclover, Vacyclovir, for viral infections such as herpes.

The longer it is left untreated, the worse it can get. The medications work best, if begun as soon as you notice you have herpes. Let your Dr. know asap. and insist you get seen, so they can determine dosage you need--or what else may need to be done.

I know you are in Portugal and that you may not have the same named meds. available? But, your urgency is to get in touch with your Dr. to get care as soon as possible.

I hope you can do so, and please let us know how you get along. You are not alone, there are others here who know what your are experiencing.

Best wishes for relief soon.

BeckyLUSA profile image
BeckyLUSA

I agree with the above. When I went on Ibrutinib, my CLL specialist prescribed an anti-viral to keep these kind of infections away. In my case he prescribed Acyclovir. Please speak with your doctor as soon as possible.

BeckyL USA

Cllcanada profile image
CllcanadaTop Poster CURE Hero

Portugal: Aciclovir Hikma, 250 mg e 500 mg, Pó para solução para perfusão

kathymac52 profile image
kathymac52

Husband is on ibrutinib, and Acyclovir has been very helpful in keeping the infections under control....also on SMZ/TMP DS 160 MG.....he was chronically getting mouth sores, and infections and this has helped a lot. Sorry to hear you are so uncomfortable.

Deta1961 profile image
Deta1961

thanks everyone you are all so helpful... i’ve been taking aciclovir since I started ibrutinib in December however in july had to take valaciclovir because it elas Worse and now again ..

Not what you're looking for?

You may also like...

Ibruvica

I'm on my 5th week and was wondering if I can swim in the pool and how much sun can I get....
oso7672 profile image

Anyone taking Ibruvica ?

I'm seeing a lot of bad side effects with Ibruvica. How many on this site have been taking this Rx...
12Caine12 profile image

TP53 testing

Hi there, I have just started treatment with V and O. Went to a CLL specialist before treatment...
Mcc28 profile image

Tp53 (17p13.2)

How effective is Ibrutinib with Rituximab (6 rounds) for a Tp53 deletion.
ANA4 profile image

TP53 Testing

Good afternoon. My oncologist called me last month to tell me that my FISH test indicated that I...

Moderation team

See all
Newdawn profile image
NewdawnAdministrator
AussieNeil profile image
AussieNeilAdministrator
CLLerinOz profile image
CLLerinOzAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.