Maintenance therapy??: Hi - I have completed... - CLL Support

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Maintenance therapy??

Victoria666 profile image
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Hi - I have completed 4 rounds of BR and the 5th one has been postponed due to low neutrophils. The neutrophils are still low, after 9 weeks, and the doctor is considering discontinuation of chemo, given that my results returned to normal after the 1st treatment.

I asked for the second opinion and the other doctor mentioned stopping the therapy, but introducing the “maintenance” therapy with Rituximab every 3 months.

Has anyone gone through this type of maintenance? What is your experience? How long would that maintenance be?

Thanks

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Victoria666
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cllady01 profile image
cllady01Former Volunteer

Victoria, if you will look to the right of your post @ Related Posts (if you are on a computer) or at the bottom of any other device, you will see several posts related to your question regarding maintenance therapy.

Victoria666 profile image
Victoria666 in reply to cllady01

Thanks. I don’t see it on my IPhone, but will check on my computer.

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

Rituxan maintenance therapy is often used for Follicular lymphoma, but is not a standard of care for CLL. Most doctors who prescribe it are more NHL oriented. That being said, your doctor, if a CLL specialist, may be able to give you a good reason for going that route. I would ask a lot of questions though.

Victoria666 profile image
Victoria666 in reply to MsLockYourPosts

Thanks for your reply. I agree that it’s not a CLL standard of care, that’s why I asked the group. The doctor who suggested it is a hematologist oncologist, but not a CLL specialist. I’ll discuss her rationale with my regular hematologist oncologist. Thanks again

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