CLL Support Association
10,296 members15,965 posts

Week from HELL!

Went to FL this past Monday to do depositions for my divorce. Was already feeling down and weak with no appetite! After depos on Tuesday morning; I was just not right! Something was not feeling right about the way I felt. When my friend D D picked me up after depositions, she said I was white as I ghost! I said; “ something is wrong with me”! My heart was racing and I was weak as a kitten and could not catch my breath. She proceeded to take me to ER in Jacksonville, FL. They took me right away. Did an EKG- next thing I know I was being “yelled” at by doctor. I was in A-fib with RVR. And- my hemoglobin was at 6 !! Been in hospital all week, rec’d two units of blood and got my level up to 9 ! I got home last night to GA. Need yo follow up with so many docs next week. Watch your levels as it can throw you into A-fib (scary). They seem to think I have internal bleeding, did endoscopy ( was fine) ! So the hunt begins,

Mimi in GA

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That does sound scary, I’m glad you are back home. Hope the doctors find and fix the problem. Take care

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Thank you! Will do !!

Mimi in GA

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So sorry. Thank you for letting us know this can happen.

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So sorry to hear about your week! You're in my prayers,

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Bless your heart, literally. Anything to do with heart issues can be so frightening. Drs sometimes forget how scary it can be for patients but it’s no excuse to yell at you. I hope things settle down for you quickly and that you find the answers you need.

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or were you being yelled at to bring you back to full consciousness?

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How scary! I don’t understand why the doctor would yell at you. What an a-hole! He has no idea what you’ve been through 😡

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Deposition is very stressful and you had health issues worsen at the same time on top of that - you are very strong to have been able to go through all that hell. I wish you peace and improvement in health and a good ending to the legal stuff so that you can focus on you and the better things with what you want to do in life

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So sorry for what you have been through. I hope you get some kind, understanding doctors in GA. I wish you the best.

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I've had A Fib a few times, and was very anemic, but an HGB of 8, not 6, and never the two at the same time. Both are scary. Both at the same time would be especially scary. I'm glad you got into the hospital and they got things sufficiently under control for you to return home. I hope your week of doctor appointments yields some answers.

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I had an HGB of 2.8 and they freaked out in the hospital. This was over 2 yrs. ago before treatment for CLL. I had pneumonia and was anemic. I needed 10 units of blood plus a pleural effusion done one month and then the next, both in hospital. The strange thing was, I wasn't scared at all and knew I was going to be fine. Got out of bed a lot and walked around, didn't feel sick, and was out of the hospital in 4 days. My Dr. told me months later they thought I was going to die, but I never even thought that. Strange isn't it.

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Mercy! Did you not feel bad with such a low blood count???

Mimi innGA

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I told my Dr. that the only thing that bothered me was that I couldn't walk very well, my legs felt like they might give out on me, so I sat down a lot. I really thought there was something wrong with my legs, nothing else. I still did my housework, cooked, hung clothes on the line, etc.

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That is so amazing!!

Your a strong lady!

Mimi in GA

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I wasn't that strong knowingly, I just really thought there was something wrong with my legs and thought a Dr. could give me something to strengthen my legs.

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So frightening for you. Good that you are now well enough to be home. Hope the brigade of docs come up with some good reasons quickly and some speedy fixes. Take good care of you.

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Mimi so glad that you had a friend that took control and quickly sort medical help In ER. Please take good care of yourself especially going through divorce!! Hoping there’s nothing too much more worry about regarding the follow ups

Sheila in oz

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That's really awful. I also had a bleeding issue that dropped hemoglobin to 5.5 required hospitalization and 2 units of blood. They never figured out what caused it, so they may not figure out what happened with you either. I didn't go into afib, but that must have been very scary. Hang in there!

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Welcome to the club. I, too, have a critical levels of Hgb (7.8), RBC (2.25) and Platelets (43) and am scheduled for two units of blood via transfusion on Tuesday and Wednesday (1 unit each day). I have suffered with afib for the past three years and had to drop Imbruvica as a result. I have been on Sotalol for my afib and ventricular tachycardia which has slowed my heart rate and is doing its job. We got to do, what we got to do. Good Luck to you. John

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I was wondering how it was going. Sorry you had all that to go thru! Glad ur home and in good hands. Wishing better days ahead! 💕

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All is ok! Lots of doctors next week!

Mimi in GA

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What a scary thing to happen when you’re already under stress. I hope your doctors get you feeling right again.

Pam

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Thanks so very much Pam.

Mimi in GA

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So sorry to hear this but thankfully you got seen just in time ...hope you are okay.

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Doing ok! Thanks so very much!

Mimi in GA

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Mimi,

So sorry you had to deal with all your health issues on top of a divorce. I had to deal with a divorce after 23 years of marriage. Most stressful thing in my life. Fortunately you had a dear friend with you so that you received the care you needed. I’ve been divorced for 15 years and life is great. Plan A didn’t work out but plan B is even better. Divorce turned out to be a blessing. Wishing you the best life has to offer. Sally

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Oh thanks Sally. He has turned out to be a real monster. Hopefully, he will be out of my life for good by Thanksgiving.

Mimi in GA

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Wow! That’s very scary. I am so glad your out of the hospital & back home. Sending prayers 🙏😇🙏 and a big hug 🤗

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Thank you so much ANGIE!

Mimi in GA

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Mimi a divorce is bad enough to have to go through but to have to deal with health issues at the same time really would be hell. I hope you are finished up with this person by Thanksgiving and you can start on Plan B as Sally said. I'm glad you had a friend that got you to the hospital and hope that you are getting better each day. Take it one day at a time. You will get there. Virtual hugs!

Paula

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Thanks Paula, so very kind of you!

Maria

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Prayers for you! Take care!!

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Take care of yourself .... You’ve had a rough time but look how many of us care about you !!

Be well!!!

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Love it! Thank you!

Mimi in GA

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Wishing you the best! 🌹

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So sweet! Thank you!

Mimi in GA

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No point in the Dr yelling at you! Take care.

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Yea; maybe I was overly sensitive. Guess she wanted to get my attention because I was crying out of panic.

Thank you,

Mimi in GA

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I hope you find a recovery from both the mental and physical issues. So much stress! And having to be in hospitals is no help. Here's hoping you will get a "week from heaven" soon. Until then you at least have the moral support from so many here. Wishing you well!

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Ohh.. how sweet! Thank you!

Mimi in GA

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Best wishes for this coming week Mimi.

You will feel better once the divorce is finalized. A new life that you will enjoy.

I know I've been there.

Take 💓

Sue

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Such a terrible time, so glad your friend was there for you. There is a condition being acknowledged now of a 'broken heart', severe stress, which you have been experiencing, can actually cause damage to your heart, i can't recall enough about the condition medically and this may well not be a factor here, but I'm pretty sure that severe stress is playing a part in the decline of your health.

I know from personal experience, through two unexpected relationship breakdowns over last 5 years that the resultant trauma and stress severely affected my cll evidencing in a doubling of my white cell count in a 2 month period the first time.

I've looked into stress and the harmful side effects much more closely since, it's essential to minimise your stress responses to trauma of any kind and i use a number of techniques now to help me do this. Thankfully mindfulness is now more widely promoted and accepted and its benefits can't be more strongly stated.

I'm still in the throes of my second relationship breakdown, ironically last night was a 'last straw' moment and im leaving him tomorrow (abroad, had been trying to work things out...) its certainly been tough, but I'm so much stronger now, yet the stress has still made me ill and exacerbated all my bloods so im not through the woods... We are human after all and loss and change hurt like hell, but finding ways to reduce our internal stress is essential for not only quality of life, but in our case, survival.

Thank goodness for this network, and the mutual support and caring, it helps us realise we are not fully alone on this cll journey with life drama thrown in at times when all you need are loving arms round you just to cope with the cll! My virtual arms are sending you a big hug, i hope the dust starts to settle soon and you can start to heal.

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Oh so very kind of you to share . Your right, my Oncologist said that cancer feeds off stress! But like the BeeGhees said; “how can you mend a broken heat....how can you stop the rain from falling down”... So I do get it! All I keep saying to myself is that TIME will heal.

Listen to your gut! Move on is all I can say; you seem smart. Blessings sent your way!

Mimi in GA

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Are you on ibrutinib?

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No- watch & wait

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Prayers from Wisconsin that all goes well for you.

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Right back to you from the dear South!

Mimi in GA

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Best wishes to feeling well again, emotionally and physically. I kind of know where you are coming from because a year ago I was at a crossroad in my marriage and was questioning the past 46 years. Did I really know the person I loved unconditionally for that long? I was accused out of the blue of all sorts of untrue things and it blindsided me to the point that the stress became unbearable. We worked it out after several months but it is still hard to forget the things he said, I have always had integrity and take my marriage vows seriously. I think the stress caused my CLL, or at least contributed to it. No way to prove it though, and sometimes feel quite resentful. Just trying to let it go and feel peace once again. You have friends here, we care about you. Let us know how the doctor visits go.

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Oh my, my heart goes out to you! I know all about the hateful things being said; you might forgive him but you never forget. I don’t know, when they accuse you of untrue things there is a breach! I found it hard to let my heart forgive him. Anyway, he is with his new Girlfriend. I will keep on crawling until I get to where I need to be. Blessings and hugs sent your way!

Mimi in GA

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