New and Impressed: Hi Gang, I'm new to this... - CLL Support

CLL Support

16,653 members26,935 posts

New and Impressed

GrapeGrower1
GrapeGrower1

Hi Gang,

I'm new to this forum but have been reading the posts for a couple of weeks. This forum seems to answer many of the questions I've had for the last two years since diagnosis. I'm 61 and a business owner that still works a full time separate job to support the 5 year old business. I, like many of you have stated, was a little deastated when I got the news. One of the interesting points I picked up on in this forum, was a reference to eliminating gluten from our diets. I found out I was gluten intolerant about the same time I was diagnosed with CLL. As a matter of fact my doctor told me that chronic inflamation was one of the very few links to a viable cause of CLL. I suffered decades of inflamation in my intestines and some in my joints which all went away as soon as I removed gluten from my diet. Too bad none of my doctors ever figured that out. (it was a chiropractor that pointed me in the right direction). Anyone else have that issue?

6 Replies
oldestnewest
AussieNeil
AussieNeilAdministrator

Hi and welcome!

Interesting that you have found that removing gluten from your diet has improved your quality of life. Eliminating gluten is very difficult without preparing your food from scratch, but at least with the gluten free diet being trendy, there's now much more choice than was the case. I note that recent research has indicated that it can be other protein besides gluten that causes the inflammation.

As a matter of interest, have you noticed a change in any of your white blood counts since changing your diet? I'm wondering in particular if your eosinophil count has dropped, as eosinophils climb with allergic responses. (A good reason to track your lymphocyte count and not your WBC)

Neil

I quit gluten too early in the process to know for sure but I'll have to look back and check that out. Do you remember where you read this info on the protein causing problems. I have noticed over that last two years that there are other things like cocoa that shouldn't have gluten in it, but still gives me a reaction. I just assumed that there was some wheat contamination.

AussieNeil
AussieNeilAdministrator in reply to GrapeGrower1

Suspicion was on a carbohydrate, not a protein: newscientist.com/article/21...

Wow, Thanks. I'm going to look into this.

Hi GrapeGrower1,

i w'd like to ask again Neil's quetion

do you think that gloten-free diet have an impact to your CLL ? did it improve your LABs (i hope so)

Med.

No, it did not improve my labs. However it did improve my general health by a major amount. I immediately started feeling better than I've ever felt before.

You may also like...