sudden loss on hearing on one side

[antonb]

Since a week i experienced a loss of hearing on my right side.

Today i had an appointment with a otorhinolaryngologist , which removed wax from my ear. But i still haven´texperienced any improvement , he told me to wait a couple of days.

Have any one have knoledge about CLL and hearing problems ?

thanks

Antonio

[cllady01 Former Volunteer]

There have been posts on this site that are related to your question.

I sure hope you only have a wax problem.

I noticed that you had posted a couple weeks ago that you were about to begin treatment with Ibrutinib or something else depending on a test you were awaiting.

healthunlocked.com/cllsuppo...

Note in this posting, one person said he was given Prednisone which cleared up his hearing problem--so, this would be a hope if your's is not the wax.

healthunlocked.com/cllsuppo...

Let us know how you get on, Anton. Best wishes for a clearing soon.

[antonb in reply to cllady01]

i will try to contact my cll dr tomorrow and see what she thinks.....I am ne here so i will have to learn to look for thing before asking . Thank you all !

[cllady01 Former Volunteer in reply to antonb]

You will notice that even the "old timers" on this site ask for other's opinions and experience. When you need some supporting information, please feel free to ask.

If you are using a desktop, you can usually find related information in Topics or Pinned Posts, but it isn't easy to get to the related posts unless you actually type a word in the title that relates to one having been posted.

[AussieNeil Partner Administrator]

Further to CLLady's reply, here's another post on this topic where a member found that the hearing loss was CLL induced and cleared after treatment: healthunlocked.com/cllsuppo...

It's not an isolated incident, either, as looking through the other posts on hearing loss will show: healthunlocked.com/search/h...

Neil

[johnl]

I often lose hearing, every two or three months. my eustation (sp)? tubes get clogged or closed off and my ear fills up with fluid so I lose my hearing. A week of prednisone 20mg clears it up. My ENT also put tubes in my ears. I don't know if the tubes get clogged because of neck nodes or sinuses. I have not yet had any treatment and I hope when I do start it will clear this up. I have heard of others getting their hearing back after treatment.

John

[gardening-girl]

Antonia, Neil has provided a link (healthunlocked.com/cllsuppo... to a previous post of mine in response to Geta on sudden hearing loss and CLL. Sudden SNHL and loss of balance was one of my presenting CLL symptoms. Hearing loss resolved with treatment and returns with each relapse.

[Skyshark]

This is a medical emergency. If it's neurosensory there is only a short time window when Prednisone may work.

This is the advice I got from my Audiology Team, when I woke up deaf in the left ear for the 2nd time. They had given me a hearing aid for the right ear some years before. That was a GP referral that took 6 weeks to get appointment with Audiology but by the time I was seen hearing had returned on the left side, just took a drink and it sort of clicked back on. I have no idea when I lost hearing on the right.

We advise with a sudden loss of hearing that you attend your nearest A&E dept to have further investigations.

Did they test for neurosensory loss of hearing? Doctor in A&E stuck a tuning fork on my head, I felt and heard nothing. Bone conduction devices don't work. I was given a high 60mg/day dose of Prednisone for a week but it didn't work and another appointment with Audiology the next day. Dx Ménière's disease.

I was dizzy when moving from lying down to upright. That has resolved itself.

I have musical tinnitus, nah, nah, nah, other times it's like a large train station sort of muffled and echoing, then there's the drunk Welsh male voice choir that doesn't know the words.

I'm now at cycle 12 of V+O and my hearing hasn't returned.

Except for a few women that don't hit the frequencies of the big deep holes, I'm pretty much dependant on Live Transcribe on Android phone, speech to text. Bizarrely I can hear directions from google maps and other android apps, with volume at max.

hearingtest.online/

Hearing test