is worse? none is worse, right?
different, but the same in that sense, right?
Also, anyone a good CML forum?
last Dr wanted to treat CLL, he missed the CML.
second, this time a specialist in both, said no, we'll treat the CML. Fyi, my CML blasts are, by bmb, 2%.
Don't you think I should W&W that one too, at 2%?
You have CML and CLL?
A friend who is very involved in the CML world recommends the National CML Society.
so all the Chronic versions are "equal" ?
I think they must be. IDK, trying to figure it out.
Untreated CML is probably less desirable than CLL because a high wbc of the type in CML can be more 'sticky' and cause 'stasis' where the white cells pool, often in vessels near the brain, which can cause a stroke. Untreated the white cell count can double in a couple of weeks.
Apart from National CML Society, this is about the best site I've seen and has a forum for Q&A cmlsupport.org.uk/
Your blasts are nice and low at 2% so you're in a good place with the CML at the moment. Definitely no W&W with CML, it can transform at any time into a far less treatable form with no warning. There are two less treatable forms - called Accelerated phase and Blast phase, neither of which you want to encounter.
Thank you SO much. I guess I'll take the Sprycel starting Monday, i already have a 30 day free supply and have already started Allopurinol.
:/
Sprycel is one of the newer TKIs and supposed to give a deeper response more quickly
than Glivec.
The side effects are almost the same as BTK inhibitors. Here's a link to the chemocare site to Dasatinib - don't worry about the long list of possible side effects.
chemocare.com/chemotherapy/...
Best wishes, keep us informed and good luck! 
That WAS/IS my worry. I'm susceptible to lots of them. TERRIBLE cramps (cannot take Statin drugs) ... and more. skin conditions, arthritis all over, sinus... kidneys, liver... PCP looking at some fluid around heart... specialist did CT, then gave me the meds, so i guess that's ok. I'm not on any other meds. :))
Thanks, so helpful!!!!!!!
I found exercise helped enormously with my cramps which made my life a misery. Alcohol makes them worse, need to keep hydrated.
Important to keep going though x
Yes, I changed my diet 8 months ago, TONS of water has stopped most cramps... however, I still feel my muscles, ribs, legs, hands, boiling... rolling... trying to knot up, several times a day/night.
I tried every Statin they had a few years ago. I'm not obese, well, technically I may be close. 6' tall, 212lbs. Was 235!
Bad knees, hips, and shoulders! I play guitar, fusion blues. :)) I can still dance. ;))
:))
actually, having lost at least 15lbs, soon maybe 20, YAY! i'm beginning to wonder if my appetite has been decreasing. ...i am ...idk... it's kinda weird not "wanting" anything. i think i might, even the chocolate, ... meh. i still am fairly certain i could gouge for a few days and gain... at least i think i could. not going to test it.
i may need a bit of iron, maybe more broccoli? :)) .
ok, answering my own questions, maybe these links are useful to others:
ncbi.nlm.nih.gov/pmc/articl...
note: UNFUNDED (like to see one of these on CML): cllsociety.org/2016/05/ash-...
Post-hospital questions
Which vaccine is best for CLLers on W&W?
Postpone 3 month followup ?????
How to tell young children
CLL and now very elevated Monocytes
