Hot flashes in CLL

[Mazendudar]

Is it a symptom or disease progression?? It’s tolerable yet can only hope it stays cool out there as it gets magnified in Warner temperatures.

[DaleFL]

I am getting more of them as time goes on. Absolute lymphocyte continues to increase as well. But this is my personal experience.

[Hidden]

I can't say I get hot flashes but my entire life I much preferred heat than cold...but I have noticed heat now bothers me and I prefer cooler temps. 85 degrees previously would feel great to me...now anything over 65 or 70 and I feel hot.

Scott

[AussieNeil Partner Administrator]

Temperature regulation challenges with CLL are a common, very annoying problem. That's understandable, given our CLL cells pump out messenger chemicals (cytokines and chemokines) that normally would influence our immune system in fighting illnesses. Check out these previous posts: healthunlocked.com/search/t...

[tdalton43 in reply to AussieNeil]

Thanks for posting. I don't get the typical night sweats, but I sweat so much during the day with any rise in temp.

[Psmithuk in reply to tdalton43]

And after hot drinks, and cold ones, and often nothing at all! It is more difficult during hot weather, though.

[Mazendudar in reply to AussieNeil]

Thank you

[Cammie]

Yes day time flushes are quite common and as Neil says above are due to the same toxins that cause the night sweats.

Fortunately for most we can tolerate the flushes. However night sweats are such that bed clothes and garments need to be changed in many severe cases.

Yes it is a symptom.

[TimHB]

Yes, this has been a symptom for me - before treatment and it's continuing now that I'm in treatment. Very difficult to control my body temp and I go from deep inner chills to hot and uncontrollable sweating within minutes - while people around me don't detect any change in the room temp. I'm constantly putting on a sweater, then ripping it off, then bundling up again. Night sweats are an issue too with occasional heavy drenching flop sweats. That's all part of the CLL fun!

[Mazendudar in reply to TimHB]

That’s me alright. Feel feverish yet body temp is normal. Start my day with the sweater, hot green tea and even the heater in Southern California, generally a warmer place.

[TimHB in reply to Mazendudar]

Green tea was recommended to me until I started treatment with ibrutinib and now green tea is forbidden. If you're being treated, ask your doc about the green tea. If you're not being treated, by all means drink up!

[Mazendudar in reply to TimHB]

I guess I will keep drinking for now. Thank u for sharing

[Hidden]

I know I have them, was so much more comfortable this winter, my counts continue to climb as well.

[jagger5]

I also experienced and still experience what

I can only describe as hot flashes(never had them during menopause)

When my physician asked about night sweats I explained about my daytime “hot flashes “and he just shrugged it off never attempted an explanation

I try drinking lots of water seems to help

[Mazendudar in reply to jagger5]

That’s what I do, counter w water yet the hot flashes are real