Dizziness when getting up too fast or bending over.

[lukejensen27]

I have been getting pretty dizzy and lightheaded almost like I’m about to pass out when I either get up too fast or bend over. I told this to my DR on the last visit but didn’t seem concerned just said you may be a little dehydrated. I have been pretty inactive the last year due to bad fatigue from the Ibrutinib plus Venetoclax trial I’m in. Could this be do to lack of exercise and being out of shape? Any of you ever experience this? It’s kinda scary.

[albie58]

This could be a blood pressure issue. When you get up too fast , your body needs to adjust and cant if you are moving too fast! Try getting up slower...it should help. I've had this happen to me as well.

[Cllcanada Top Poster CURE Hero]

Its called positional dizziness, have you seen your cardiologist? I have passed out and fallen a few times, luckily I haven't broken anything...

It could be serious, atleast have an ECG and Holter done... ibrutinib has heart issues...

~chris

[DaleFL in reply to Cllcanada]

I agree 100% with Chris

[lukejensen27 in reply to Cllcanada]

I go back to MDA next week. I’ll see what they say. In the mean time I’ll see if my local DR will seen me before then. Last night I awoke from a weird dream and jumped out of bed and I was so dizzy and my heart was racing like crazy. It’s was a scary thing to deal with being half asleep.

[MsLockYourPosts Passed Volunteer in reply to lukejensen27]

Please check with a cardiologist. Have you had blood work done recently? Low HGB also comes to mind.

[lukejensen27 in reply to MsLockYourPosts]

I had my blood work done a couple weeks ago. Everything was in normal range then.

[MsLockYourPosts Passed Volunteer in reply to lukejensen27]

I hope you find an answer soon!

[nkferg]

en.wikipedia.org/wiki/Ortho...

Common issue, especially as you age. Staying hydrated and exercising will help. If I squat down for to long, and get up fast it about drops me. I am fine otherwise.

[Mansy]

I think one of the members on this site called it "positional vertigo." I have had the same thing happening to me once many years before my ibrutinib+ventoclax trial, and once after a month of taking ibrutinib. In both cases, it lingered for 2-3 weeks and slowly disappeared by itself. No idea what caused them or got rid of them. It is an extremely difficult thing to diagnose precisely. Another member said it has something to do with the drying up of crystals inside the inner ear.

Hope it goes away soon...

Mansy from USA

[Stretch1]

I’ve had it all my life and in my case it’s called orthostatic hypotension (means drop in blood pressure when you stand up too quickly). Most doctors aren’t concerned - tell you to stand up more slowly; however if it’s a new problem for you I would definitely get it checked out - because it has many causes and some are concerning.

[Eric_68]

Hey Luke

I get this often as I have cut all animal products to a min, could be Iron levels.

I don't know how the meds may affect as I not on the meds. But I do often get the dizziness and light headed were I need to re sit down.

[TimHB]

Dizziness like you describe is one of the symptoms that sent me to the doctor that resulted in my CLL diagnosis. I am not on ibrutinib yet (starting tomorrow) but my docs all agree it's due to the lymph nodes in my neck putting pressure in my inner ears causing dizziness. I'd ask your doc about that.

[june65]

How is your haemoglobin count. I passed out twice in the space of a few days, the second time I suffered a compression fracture of my spine and ended up in hospital for 6 days, turned out I was aenamic and had to have 2 units of blood. No trouble since.

June

[cllady01 Former Volunteer]

Are you drinking the amount water suggested with Ibrutinib and most treatments?

It can be a hassle if you haven't been used to drinking water in that amount daily, but it will certainly help with dehydration as well as get your urine output involved in clearing some of the residuals of the meds.

I agree with the admonition to see a cardiologist, esp. after the awakening from a dream experience.

Our replies about what might help remind me of the blind man first coming in contact with an elephant and trying to describe it.

[BeckyLUSA]

Have had orthostatic hypotension for about 45 years. You learn to deal with it, even in the middle of the night. I never get out of bed without sitting on the side for a couple of minutes.

Talk to your doctor, but it’s probably nothing serious.

BeckyL USA