Eight years remission : Visit to my CLL... - CLL Support

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Eight years remission

hammyj profile image
33 Replies

Visit to my CLL specialist today. Blood test results show no deterioration. Happy Days!

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hammyj profile image
hammyj
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33 Replies
Justasheet1 profile image
Justasheet1

🙏🏻🎉...CONGRATS

hammyj profile image
hammyj in reply toJustasheet1

Thank you

PlanetaryKim profile image
PlanetaryKim

Fantastic! Good to hear a success story.

kim

hammyj profile image
hammyj in reply toPlanetaryKim

Thanks

jaypax profile image
jaypax

That is fantastic for you. Keep it up. Brilliant! Jeff

hammyj profile image
hammyj in reply tojaypax

Thanks

Bethan49 profile image
Bethan49

This is soooooo good to read! Thank you for sharing! Wishing you another 8 years and more :)

hammyj profile image
hammyj in reply toBethan49

Thank you

Mandy56 profile image
Mandy56

Brilliant, so glad for you. Which treatment did you have? 🍾 🎉 h

hammyj profile image
hammyj in reply toMandy56

Six months of FCR. Nothing since. Which stage are you at?

Mandy56 profile image
Mandy56 in reply tohammyj

Just started FCR 10 days ago. Hopefully coming out of the chemo fog this weekend. 🙂

hammyj profile image
hammyj in reply toMandy56

I feel your pain. I used to have 2 good weeks and 2 not when doing FCR. There is an end. Stay mentally strong to get through it.

hope864 profile image
hope864

Congratulations!!! 🎉🎊👏🏻👏🏻

CAGIULIANO profile image
CAGIULIANO

great to hear, congrats

hammyj profile image
hammyj in reply toCAGIULIANO

Thanks

Canuck901 profile image
Canuck901

Excellent news would luv to hear your story

hammyj profile image
hammyj in reply toCanuck901

Diagnosed in 2009. Six months of FCR. Then been in remission. Just Roy to make the most of every day. How about you?

BeckyLUSA profile image
BeckyLUSA

Congratulations 🎉

pkpayne profile image
pkpayne

Way to go!!!!! May there be many more years to celebrate!

Paula

Lily_Pad_Master profile image
Lily_Pad_Master

Awesome!!!

meemsdream profile image
meemsdream

Awesome news....wishing you lots more years...

Mystic75 profile image
Mystic75

Awesome!!! Congratulations!!!

Cfighter profile image
Cfighter

Wonderful news!

Anthonymac profile image
Anthonymac

Hi Hammyj,

Many congrats! Are you mutated or unmutated ?

Regards,

Anthonymac

hammyj profile image
hammyj in reply toAnthonymac

No idea. How would I know and does it make a difference?

Anthonymac profile image
Anthonymac in reply tohammyj

Yes it does in terms of remission after FCR. Unmutated as I am means a shorter period of remission I have been told. 2-3 years is typical.

Flabal profile image
Flabal

So happy for you. Your story gives me hope one day I’ll b like you. What treatment did u have? FCR?

hammyj profile image
hammyj in reply toFlabal

FCR. Yes. Where are you with your treatment?

Flabal profile image
Flabal in reply tohammyj

Hi. My hematologist changed his mind and my RBC count got back to normal. Now I’ll only be back in June. I have changed my diet and walk everyday trying to avoid chemo for as long as possible. I have already noticed my nodes on the neck smaller. But I’ll only really find out when I see the doctor. How did u treatment go? Did u manage to work?

Mariaj66 profile image
Mariaj66

I finished FCR in Feb , told today that I'm in remission , really hope I get as long as you , Well done x

Pepper122 profile image
Pepper122

Well done! Must be a record. My remission is 2 1/2 years. Eight years is terrific.

Canuck901 profile image
Canuck901

Wow congrats! Did you change your diet after FCR? How old were you when you had FCR and what hospital did your FCR ? Thanks

Eric_68 profile image
Eric_68

Excellent to read this .... well done

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