Happy Coincidence or ...: Even though I have... - CLL Support

CLL Support

23,094 members39,665 posts

Happy Coincidence or ...

Steffi50 profile image
11 Replies

Even though I have Stage 1 CLL I have been pretty ill this year and finding it hard to keep going. The support of this group has been important to me. Over the last few weeks (and finally off tamoxifen after 5 years for breast cancer with all the withdrawal symptoms that brought on!) I have felt better and better. My neck glands are significantly down (although I have lost a significant amount of hearing as these were in my neck) but all in all onwards an dupwards. So yesterday I went to a body pump class at my local gym and the instructor is a haematologist at Kings, London. Says I am doing the best thing exercising and that he can help me when the time comes ........ I felt blessed to have met him. I will not post a picture of me in class - too too shaming.

Written by
Steffi50 profile image
Steffi50
To view profiles and participate in discussions please or .
Read more about...
11 Replies
UK-Sparky profile image
UK-Sparky

Hi Steffi, welcome. Very positive and taking steps always good things to do.

Marc

Steffi50 profile image
Steffi50 in reply to UK-Sparky

Thank you.

Jm954 profile image
Jm954Administrator

Bless you Steffi, completely understand about the photo as I would be the same and what a happy coincidence to meet a friendly haematologist like that!

Steffi50 profile image
Steffi50 in reply to Jm954

After my beauty make-over I shall be posting big time xx

Jm954 profile image
Jm954Administrator in reply to Steffi50

Wooohooo, you go girl! xx

Ohannie236 profile image
Ohannie236

Steffi, glad things are going better for you, and good for you being active! I know what you mean about being blessed by your encounter with the hematologist. The sweetest woman from my church just happened past my hospital room when I was still a bit groggy after my port placement, and she was definitely my "angel" for the day. My pastor said there are no accidents, right? (-: Wishing you all the best from Ohio!

Steffi50 profile image
Steffi50

Such a lovely message. Thank you Ohannie236 and keep in touch

Ohannie236 profile image
Ohannie236 in reply to Steffi50

Thank you. I will.

Madprofessor22 profile image
Madprofessor22

No such thing as shaming. Poor attitudes can be shameful but supportive people struggling together through the adversities being served on our plates is worthy of applause no matter what our stage. I’ve spent the last five years in Watch n Wait...after surviving uterine cancer. If it’s not one thing it will be something else. Celebrate YOU as you are now. Askmehowiknow

TAS50 profile image
TAS50

Ok how do you know?

kay9hayes profile image
kay9hayes

This group has helped me so much!

Not what you're looking for?

You may also like...

First real night sweat

Hi All, I have just had my first introduction to a medium night sweat, having been diagnosed in...

Schwannoma or Lymphoma

Hi All, I am still waiting for the Biopsy of the neck, and CT neck Scans, as well as a full body...

How fast or dramatic is lymph node enlargement?

I've been reading the posts about symptoms and enlarged lymph nodes is frequently mentioned. Since...

What a coincidence

I have just been diagnosed with CLL, I am at a loss to understand this as my husband has had the...

Acalabrutinib treatment yes or no

So my haematologist has been able to get me access to Acalabrutinib. I’m excited about this. But...