Vision blurry

[Marlene9]

Can CLL make my vision blurry?

[Cllcanada Top Poster CURE Hero]

Yes it can, but rarely.. you need to see an ophthalmologist...

I just posted this link yesterday..link now fixed

healthunlocked.com/cllsuppo...

~chris

[Marlene9 in reply to Cllcanada]

Wow, speedy gonzales! Thanks for your quick reply.

[cllady01 Former Volunteer in reply to Cllcanada]

CHRIS, your link is to the wrong posting--I'd post the correct one if I could easily find it.

[Cllcanada Top Poster CURE Hero in reply to cllady01]

Thanks...Cllady01...glad someone follows links... I fixed it

healthunlocked.com/cllsuppo...

[Newdawn Administrator]

Make sure is not cataracts or related to high glucose too as well as many other optical issues. As Chris says, you need a good ophthalmic opinion.

Best wishes,

Newdawn

[Marlene9 in reply to Newdawn]

Thanks for quick reply.

[Mcpill]

I cannot tell if you are on any medications, but amazingly when I switched from Imbruvica to Venetoclax my sight became increasingly blurry. I waited a few months because my glasses were not even a year old. When I finally went to my eye doctor and described my issues , he knew immediately what was wrong- my glasses were suddenly too strong- especially for distance. We suspect the change is due to reduction in inflammation . Imbruvica caused inflammation and edema problems for me.

Wishing you all the best.

Susan

[maggiewillow]

Hello marlene,it's wierd you should say that about the possibility of CLL making your vision blurry.I have had CLL for 10 years and am on watch and wait and have found that my eyesight has deteriorated in the last 2 years, the optician says I have the beginnings of cattaracts.I cannot drive at night anymore as the headlights from other cars dazzle me.I feel this is possibly age related though (65) I know our immune system is under performing with CLL, I feel it is a rather complicated disease as we can get various aches/pains/illnesses ect because of our lack of immunity.I live my life being positive now after the initial shock of diagnosis.I take MSM tablets and Turmeric with black pepper daily and have noticed a marked difference in my energy levels, It did take a month of taking them before I noticed any effect (4 a day) I wish you well and hope your problem gets sorted.

[GMa27 in reply to maggiewillow]

I have been on w&w for 11.5 years. I am 62. I noticed the past 2 years my vision was changing!! I assumed it was my cataracts. I had LASIK in 1998. Tiny cataracts. Problem is some LASIK patients who have astigmatism, are developing problems with some changes in vision. I mentioned change in vision to oncologist and it seems likely since it's so slight ( but still annoying to me) that it might not be related to my CLL. Going back to Moffitt in a few weeks for last recommendation. My CLL needs treatment after all these years and will get final labs. I will ask doctor how do I distinguish for ex. eyes... what is from CLL or not and how do they know.

[Haileybury]

Yes, Marlene9

I got blurred vision after I had been on Ibrutinib for several months. My optician referred me to a consultant ophthalmologist. He put me on steroid eyedrops and after about 8 months, my vision returned to MY normal.

Good luck.

David

[lankisterguy Volunteer]

I got blurred vision in one eye that varied from day to day while taking Ibrutinib. After thorough testing for all the possible CLL, nerve and drug related problems we discovered that my eye lid was staying open at night and the surface of my eye was drying out. Artificial tears fixed that problem.

I also had two types of cataracts in that eye (a dark yellow lens and a cyst at the focal point) and had the 5 minute operation to insert a man made lens. My operation had two complications but still only took 10 minutes and I now see far better, especially at night and with much brighter colors.

I found the change to man made lenses to be wonderful. Highly recommended.

Len

[JMSBD2 in reply to lankisterguy]

Interesting that I've developed the same problem with my right eye. Saw an opthamologist & was told blurred vision, pain, and swelling was caused by my eye not fully closing while asleep during REM sleep. . Also prescribed artificial tears and a gel for nighttime. CLL-induced coincidence?

[lankisterguy Volunteer in reply to JMSBD2]

I believe Ibrutinib was to blame for mine- it affected my fingernails, hair and skin, so the cornea or tear production would not be a surprise. I was only on Ibrutinib for 9 months, and stopped due to the skin problems. Have not had any problems with the eyes since.

Also- I believe the dry eye/ tear problem is actually the loss of the thin layer of oil that floats on top of the water in tears, and if that oil layer is missing the tears dry out much faster.

The artificial tears use carboxymethylcellulose, dextran, glycerin, hypromellose, polyethylene glycol 400 (PEG 400), polysorbate, polyvinyl alcohol, povidone, or propylene glycol, among others, to duplicate the water oil natural mixture. You may want to try several different product types to see if you get better results with one type.

webmd.com/drugs/2/drug-1660...

webeye.ophth.uiowa.edu/eyef...

Len

[Newdawn Administrator]

As someone who is going for a cataract referral in an hour (and blurry eyesight in one eye), these posts are reassuring.

Hope you get sorted soon Marlene.

Newdawn

[PaulaS Volunteer in reply to Newdawn]

Hope all goes well for your cataract referral, Newdawn! If the timings on HU are right, you'll be there right now

Wishing you well,

Paula

[Shooey in reply to Newdawn]

Hi Newdawn

I had my cataract referral last week and was told by the ophthalmologist that the chlorambucil/obinutuzumab has PROBABLY speeded up the deterioration of my eyesight. I had new distance glasses four weeks ago and as at last week the new glasses were out of date due to the fast deterioration. No point spending another £250 for new lenses then! Hoping that I won’t have too long a wait for the blighters to be dealt with. I was really panicking about having the anaesthetic delivered by injection in the eye but she assured me that this is old hat and done with creams etc nowadays - PHEW!!

Hope your referral went well

Best wishes

Shooey

[Newdawn Administrator in reply to Shooey]

Sorry to hear that Shooey. CLL really is the condition that keeps on giving! 😏 I’m as yet untreated.

I’m just waiting to see what kind of waiting list there is for the surgery. The concern is I’ll need both doing fairly quickly following each other due to the massive disparity there will be in sight.

Newdawn

[Shooey in reply to Newdawn]

Yes, i’m the same, both need doing but I was told that it’s ‘normal’ to have approx six weeks in between surgeries, mmmmm, could be interesting. I finished treatment last week and am determined to visit my son in Sydney in the autumn, it would be brilliant if I could see the sights with two good eyes rather than stumbling around like blind Pugh!!

As you say, CLL just keeps giving and I must admit my mantra of never lose your sense of humour is wearing a bit thin now but hey there’s folk a lot worse off.

Let’s hope treatment for you stays on a far horizon.

Shooey