7 months post FCR and I’m back at A&E - CLL Support Assoc...

CLL Support Association
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7 months post FCR and I’m back at A&E

Great. Raging temperature sees me back at A&E this morning. Lengthy wait ahead in all likelihood.... wish me luck

13 Replies
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Best wishes Matt and hope you’re seen quickly. In fact insist you are!

Newdawn

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Do you not have a Triage number you can call rather than sitting up at A&E and perhaps catching more germs, or is this what you have been told to do by your haematologist or Clinical Nurse.

Hope you feel better soon. Take care

Susiecarer

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Susie the triage line is a call centre who redirect you to A&E. I have complained to my hospital and consultant about this. Their answer was that they know the risks being run by patients, but are unwilling to change their system.

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Oh dear. Not unusual. Exactly the same as me. 1 month after finishing all tablets a severe chest infection got me. GP was worried but I avoided hospital.

We are so vulnerable until our bloods are totally normal. They will get there.

You are in the right place even though boredom and waiting is getting to you.

Life will get better and more normal post 12 months FCR. 18 months on and I’m totally normal but I still take care.

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Hi Matt - wishing you much luck but agree with Newdawn....insist that they see you soon. Keep us posted.

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I was the same.. 5 months post chemo and an admission... Its so frustrating... Take care,.. Let us know how you get on. Late onset neutropenia is apparently quite common... X

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Back home - bloods are a bit better and looks like I’ve just got flu! Still temperature at 38 meant I was right to go in. Triage number not available at weekends so 6 hours with lots of other, equally deserving sick people!

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Really? Its amazing how different NHS hospital / clinics do things. I already have my 24hr line number, Which I can call if my temperature goes over 37.5c. Though I am only a few days away from medication (I think).

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Funny how I just have the flu can be good news for some of us. I hope you feel better soon!

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It is dangerous for us CLL'ers waiting in A&E. Make sure you make the nurses aware of that as to my cost when I recently had to go to A&E they were not aware of the risks at all until I pointed it out to them. I was then isolated from the masses. Sadly, I was there for 10 hours and it was 8 hours before they started any treatment. Best of luck.

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Oh Matt, I do wish you a speedy recovery. What misery.

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In similar situations I have called NHS 111 and have got very speedy GP appointments at a local hospital.. I am surprised and disturbed that other people with CLL have had to endure lengthy waits at A &E. Wish you better. Antony

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Matt, I did read your posts--very helpful and honest about all the worries that go with treatment and the struggle to be your best at work while trying to mend at the same time. Thanks for your courage. I hope you are doing better and will keep you in my prayers. Best to you from Ohio!

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