Secondary cancers

[Sushibruno]

How common are secondary cancer with cll?

[Cllcanada Top Poster CURE Hero]

Depends... age is a factor so is cancer type. Sometimes treatment with chemoimmunotherapy, but also new agents can cause secondary cancers... but the risk seems to be substantually less, but not zero.

Certainly skin cancers are quite common. Prostate, kidney, colon, lung, gastric cancers...

MDS/AML and Diffuse large B cell lymphoma and Hodkin's lymphoma by Richter's transformation...

Here is a previous discussion.

healthunlocked.com/cllsuppo......

healthunlocked.com/cllsuppo...

patientpower.info/video/cll...

patientpower.info/video/are...

Medscape

medscape.com/viewarticle/56...

A retrospective study from the days of chemo and chemo immunotherapy... things may be changing for the better, but pretty early yet...

bloodjournal.org/content/12...

Since I have had/have two secondary cancers in addition to CLL my advice, get a dermatologist and do an annual body scan, test for occult blood in the stools, and do a colonoscopy if needed...monitor any lumps or bumps, they could be nodes, but they could be an exnodal transformation...

Further see an opthamologist annual... and be very body aware. Regular examinations breast, PAP, prostate... don't put them off...

~chris

[Lola69 in reply to Cllcanada]

I have a Gyno, dermatologist and ophthalmologist as well as a family doctor and oncologist for my CLL. 2 years ago I noticed a spot on my vulva and thought was an ingrown hair. .. dermatologist said to go do a Pap test and lucky for me came out clear but spot on vulva was a VIN AND LUCKY FOR ME IT WAS REMOVED .. it is caused by the HPV VIRUS .. no idea where I caught it but point is if u notice anything off don’t wait. Glad I went. ..

[Sushibruno in reply to Lola69]

Thank you. how old are you? Where are u from? Is that u in the profilepug?

[Sushibruno in reply to Sushibruno]

Pic*

[Lola69 in reply to Sushibruno]

I turned 53 on January 4th :)) I live in Montreal,Quebec Canada 🇨🇦 yes that’s me in the picture going on year 5 of SLL a rare type of lymphoma. Treated same way as CLL though

[Ellieoak]

Yes I think it is important that we get checked by the doctors whether it’s every six months with the dermatologist ,once to year with the Gastro guy and once a year chest X-Ray. If you do have a cancer somewhere more often that doctor will see you.

[lankisterguy Volunteer]

Hi Sushibruno,

Cllcanada has an excellent, detailed & thorough answer.

The short version I learned at the last CLLCanada live conference was that CLL patients get all secondary cancers about 2.3 times more often than "normal" folks, and skin cancers 5+ times more often. A Canadian study discovered that we even get 2nd cancers more frequently than most other types of Lymphomas.

So after my first skin cancer removal, I get a thorough full body skin exam from a dermatologist/oncologist every 6 months. And I get colonoscopies more often, even though the last polyp was removed 10 years ago.

Len

[Lola69]

When I was first Dx I went home to mother and laughed. She found it odd!! We all have our own way of receiving news!

[Sushibruno in reply to Lola69]

Did u really wow u are the bravest person i can believe u just laughed did u grief at all? Are u on wait and watch?

[Lola69 in reply to Sushibruno]

I was on watch & wait only 3 months. I had no neck. .. first doc did not wanna treat me so I found another!

[Lola69]

Don’t know if u have unlimited texting but private number edited out by Admin as a necessary protection particularly as this post isn’t restricted to the community.

Please contact using pm’s...personal email addresses and numbers are not permitted.

[Sushibruno]

Sorry lola but i don't exactly know what u mean

[Sushibruno in reply to Sushibruno]

Can i send u my email through here?

[lankisterguy Volunteer in reply to Sushibruno]

All personal information should be sent as a Private Message- to do that- click on the other person's name and then look for the Green Box labeled "message" in the upper right of their ID screen. here is what Lola's looks like healthunlocked.com/user/lola69

Click the message box, that will give you this screen. healthunlocked.com/messages...

then type your confidential info and hit send. Then only you and she have the info.

Len

[Sushibruno in reply to lankisterguy]

Thank you👍