I have CLL since 2009, stage 4 when diagnosed. I have been on Imbruvica for almost 4 yrs, no side affects and I’ve been in remission for 2 yrs, I also get gamma globulin infusions every 4 weeks. yesterday I took the last dose because my grant is at zero, I’m on Medicare and the pharmaceuticals have no assistance for Medicare or Medicaid patients, unbelievable since CLL is most prominent for seniors. I’m trying for other grants but so far I’m finding that neither the specialty pharmacy nor the oncology office are being very proactive and no sense of urgency. I’m very concerned about possible withdrawals and what’s ahead for me if I can not continue on Imbruvica because the copay is unaffordable for me. Anyone else experiencing this?