Hair texture

[betmaxbaby]

Has any one on Imbrociva had a problem with there hair texture turning into like a brillo pad?

[Cllcanada Top Poster CURE Hero]

Very common, you may start noticing changes in your finger nails as well.

~chris

[betmaxbaby in reply to Cllcanada]

Thks after i read further i saw all the posts on it. My hair was so bad and then ive had a reduction in my imbrovica down to 1 a day and the hair has come back like u switched a light switch !t totaly feels like silk now but i had started taking Biotin at the same time and wasnt sure which was doing the improvment. nails have improved a little, but nothing like the hair.

[Cllcanada Top Poster CURE Hero in reply to betmaxbaby]

Did your doctor advise you to reduce dose? If you did it on your own initiative, its not advised.

~chris

[betmaxbaby in reply to Cllcanada]

Nooooo, doctors orders. we have gone 3---2----now at 1 for quite awhile. seems to be ok on the blood work.

[PlanetaryKim in reply to betmaxbaby]

What was your doctor's reason for dose-reducing you, betmaxbaby? I'm curious since I am on Imbruvica now and would like to dose-reduce down the road.

kim

[betmaxbaby]

I think he just liked the way i responded to the drug.

[PlanetaryKim in reply to betmaxbaby]

Good to know!

[Ellieoak]

Yes my hair has gone from straight to curly but the curls don’t show up unless I put on some gel after I wash my hair on the one I use is called Strictly Curls. I put it on and wait for to dry and then I comb my hair out and It looks very nice.

[SueKRM]

My hair seems to have gone thicker and also has developed some curls. It used to be very straight. Actually I quite like it !

[Berrytog]

Yes, brittle splitting nails, sore cuticles are par for the course. Keep your nails short and wear gloves to do work. Sore cuticles seem to get better with time, use E45 cream and wash in cooler water.

As far as hair is concerned, mine has got thicker and stayed dark instead of going grey, I am now seventy two. It has always been a little dry but now not so much especially if I don't wash it too often. The odd wave is much the same. Use Vitapointe on wet hair, it works wonders to straighten and condition. I have found that after five years on Ibrutinib things settle down if you bear with it.

[RJR1]

I was going to say.... if Imbruvica helped with hair growth ( re growth) I would gladly up my dosage...white, grey, blonde, red... curly, straight ... whatever. After being bald for nearly 40 years I wouldn't complain.

But reading further in comments. The list about 3/2/1 reduced dose intrigues me. I've had great results 17 months in. I've asked about trying a reduced dose regularly. As recently as last month my Dr advises that drug manufacturer continues to suggest full vs reduced dose. ( at what they charge per dose I can understand them not wanting it reduced).

Any more folks out there with continued good results with reduced dose ?

[betmaxbaby in reply to RJR1]

My Doc said he had a gal on i every other day, but she was 92 and very fragile. Ya the price just blew me away. Thank goodness

it is funded.I started on Imbrovica 11/16/15. Couldnt find my reduction dates, there hiding here some ware. lol.

[Bowler29]

Yes! My hair looks "fried"!