Finally I become of Imbruvica's family - CLL Support

CLL Support

22,366 members38,474 posts

Finally I become of Imbruvica's family

Cervus_dama profile image
10 Replies

My fifth day Imbruvica. What to expect and what to keep as a young patient ? Blood picture from today- chronic progressive ;) Still on corticosteroids 2*4 mg Medrol!

I feel boringly normal...хахахахх

Best regards CLL friends!

Cervus_dama

Written by
Cervus_dama profile image
Cervus_dama
To view profiles and participate in discussions please or .
Read more about...
10 Replies
PlanetaryKim profile image
PlanetaryKim

Good luck! I hope you will keep us posted on your progress. :)

Cervus_dama profile image
Cervus_dama in reply to PlanetaryKim

Thank you, PoetKim! I will ;) So far so good...

Best regards <3

cartwheels profile image
cartwheels

4 weeks for me and after a achy painfull few weeks I like you now feel normal and you can drink beer wine etc I told my consultant in had stopped drinking after seeing posts that you shouldo not and he told me there is no interaction with ibrutinib so drink if I want too . Will still take it easy but great to know you can enjoy a beer if you want to. You might get bone pain etc at some point but it's normal and will pass as fast as it came all the best

Cervus_dama profile image
Cervus_dama in reply to cartwheels

Thank you for you replay , Cartwheels ;)

The photo is from my two-year waiting period (waiting for the right treatment).

I am taking easy too...Summer time only beer, winter time glass of wine! Beer for Platelets, red wine for Hemoglobin.

Best regards

cartwheels profile image
cartwheels in reply to Cervus_dama

I lived and partied right up to the day I started taking ibrutinib looks you too carried on living and why not

Cervus_dama profile image
Cervus_dama in reply to cartwheels

I'm 37 years old ;) Still here still alive...7 years CLL patient. ;)

richutchens profile image
richutchens

I feel boringly normal as well and I'm on my 9th month.

Cervus_dama profile image
Cervus_dama in reply to richutchens

Thank you, Richutchens! I am still on my 6th day ;)

Hoffy profile image
Hoffy

I take mine at night before bed and it seems to keep my stomach issues to a minimum. It might help me sleep too! Overall it has been fine. My nodes went down in one week

Cervus_dama profile image
Cervus_dama in reply to Hoffy

Cool!!! My nodes are already softened but still large. Thank you.

You may also like...

what happens if I stop taking Imbruvica?

every other day and new blood blisters on my toes and feet which have to be drained. What is going...

Imbruvica

to 5.5 and needed 6 blood transfusions over time. And lots of Prednisone to keep it up. I did more...

imbruvica

started imbruvica. Day 2 severe diarrhea. wondering how long this will last. what else can i...

Imbruvica

treating CLL patients with Imbruvica. Someone out there currently taking it, for how long, and what...

Imbruvica to Venetoclax

been on Imbruvica for 4 yrs, all was going great until the beginning of this year. Now my blood...