This is my first post here. I survived a two month coma & 3month stay in ICU. Influenza A, Strep A, Double pneumonia, severe ARDS, MOF ( including my heart, kidneys & lungs). I was intubated, on dialysis for 70 days. Remained on assisted breathing and trachy for a further 20 days. My pressing battle was now combating acute muscle waste. I was now 60kg and looked like a 'drought victim' biafranesk.
About 2 weeks after waking up, one of the nurses casually dropped into the conversation " and what are they going to do about his leukaemia?"
The look on my poor wife's face. My family & friends had decided that I had enough on my plate at present, they had carefully expunged any reference to it, from their conversations & patient diary.
Now, 10 months post hospital, I am still fiercely trying to regain the priveledges of 'normal' life. I'm prone to infection and exhausted some of the time. I don't smoke, nor do I happen to drink. I eat well and if not a gym goer, each day, I take the dogs for a good hour hike. I'm 52 with a family that includes some children at school age & grand children.
My question is how best to keep CLL in check.
For instance, work ( which for me is essential) - every time I come to do a job - I come down with an respiratory illness ( literally the day before). Does stress bring on symptoms?
I was lead to believe that CLL was nothing to worry about, an old man's disease. The further time goes on , I realise I have to be proactive with regards to my health.
Any tips would be most welcome.