Calling all treated with Venetoclax/Venclexa/ABT-199 - and all others interested in supporting Australians to gain non-chemo CLL treatment

[AussieNeil]

Final call to support affordable CLL non-chemo treatment for Australians - and improve the chances of your country approving this very effective drug when the successes from Australian patients treated with Venetoclax are available for review by your government body assessing new CLL drugs.

All of us can submit comments, not just those in Australia, as has been proven by PaulaS , MsLockYourPosts and tekusa . Remember that the deadline is March 8th Australia time - that means you should submit your reply right now!

Venetoclax for relapsed/refractory CLL will be considered at this March's Pharmaceutical Benefits Advisory Committee (PBAC) meeting for consideration for inclusion on the Pharmaceutical Benefits Scheme. (PBS), hopefully making it the first affordable non-chemo treatment available for relapsed/refractory Australian CLL patients.

Patients, family members, health care organisations, clinicians, researchers and other stakeholders are welcome to provide feedback to PBAC via their online portal.

Please don’t underestimate the value of your feedback.

When asked for the meeting date - enter March 2017.

NOTE: The CLOSING date is this Wednesday 8th of February, 2017. That's NOW!

Thanks to Sharon Winton, CEO, Lymphoma Australia for bringing this to my attention.

Neil

health.gov.au/internet/main...

[Debinoz]

Hi Neil - deadline is Feb 8th - ie tomorrow - just need to update your top line!

[Oleboyredw-uk]

Phew, done, hope it helps you guys. Had to guess a postcode.

rob

[Agiledog]

I tried to post to the link, but could not get the form to accept submission due to my improper completion of the postal code. I am in the U.S and the form appears set up for those with Australian addresses. Can anyone give me guidance on how I can enter my US postal code acceptably?

Bud

[AussieNeil Administrator in reply to Agiledog]

Try 2600 - Australian Capital Territory

[Ernest2]

Read this morning. Hope my entry is not too late.

I went for 2600 on the postcode, and added an apology in one of the later boxes that I am actually in and from the UK.

The very best of luck on this petition.

Ernest