Diagnosed one month ago and sill trying to come to grips with the implications. I'm 58 and on W & W (and worry). Had flow cytometry done which showed cd-38 positive. Also sent for FISH testing with results pending. Last CBC show slighly elevated WBC (13) and ALC 6.2). I know that I am in a much better place at present than many others on this forum so I feel fortunate (and sympathetic to those experiencing bad symptoms).
What drives me crazy is the uncertaintly and not knowing if symptoms I'm experiencing now or later relate to CLL or something else. I recently complained to my hematologist about unusual joint pain which I had pre-diagnosis and has now gotten worse. He stated unequivocally that it's unrelated. I did complain about upper right abdominal discomfort and he sent me for an ultrasound.
I guess some of this anxiety will subside with time, especially if subsequent blood work shows slow or stable WBC and ALC. I have come to the very unscientific conclusion that, in my case, stress played a significant role in either acquiring CLL or in influencing the elevated CBC values. The latter were completely normal until I experienced what was for me unprecedented stressors in a concentrated period of time (death of parent, diagnosis of other parent with stage 4 cancer, major changes at work, etc).
Sorry to babble.