It was a three hour drive from Home to Bethesda MD. Appears I am progressing slowly, and after yesterday's appointment, my next appointment is Sept 14 2017 (one year away). Yesterday was first CT Scan for me. Swollen Lymph nodes in groin are between 2-3 cm both sides and all others are less than 1cm everywhere. No spleen enlargement.
Lymphocytes are now 39 K/ul up from 36 K/ul six months ago. The IGG are 769 mg/dl down from 843 mg/dl six months ago (steady march downward). B2 Microglobulin now 1.9 up from 1.7 six months ago. RBC 4.72 M/ul (always at that level since diagnosis) HGB 15.0 g/dl (always at that level since diagnosis) Platelets 211 (always at that level since diagnosis).
No B symptoms. Diagnosed with CLL Nov 2014. Sort of a Newbie! (((Mutated IgVH, No Zap 70, NO CD38, Ki-67 is 0, and karyotype us Normal Fish......all measured at OSU March 2015.)))
Truthfully I would like to knock my disease down, but docs will not treat low risk CLL patients unless there are symptoms. Not even for the early treatment front line trials.
Post if you know of one!
I Had a CT scan yesterday and found small irregularity with heart that I will need to check out. I think my (avg 3 / day) beer drinking has caught up with me! Or could be my father's family genetics are setting in. I exercise a good amount so I was little surprised.
My Dad has a defibrillator installed so when his heart beat gets low, the defib will send out mild stimulus to increase his beats. Dad, unlike me, is not a beer drinker, hardly ever. Instead he reads the Wall Street Journal front to back but no exercise. My mom, and her mom, are the ones with CLL, now me. "Mon Dieu" ..... Mom is cajun french, and she would say that all the time when I was growing up.