The soles of my feet are very hot and swollen and painful . Pins and needles type pain ..... Is this related to CLL and what can I do to stop it !! Making it difficult to walk ... Especially in the mornings
Taking green tea , acai, cinnamon, clove , flax seed, vit d, omega 369, and turmeric supplements . Stage 0
Thank you ❤️
Decodes
I haven't specifically heard of this symptom but tingling in the legs etc appears to be fairly common.
In view of your problems with walking etc I would advise taking some medical advice as sounds to me that it could be circulation problems.
Not everything is down to your cll so it would be better to see your med team about this rather than let it go.
Geoff
Decodes, burning feet and pins and needles isn't normal and always warrants investigation. I experienced this and it was attributed to nerve impingement in my back. However, it turned out to be type 2 diabetes and turning that around has massively eased the problem. I found this link informative and useful. My advice would be don't assume this is necessarily CLL related. Hope you get some relief from it soon.
footvitals.com/nerves/burni...
Newdawn
You've had some good advice from Cammie and Newdawn, but I'd also ask you to think about all the supplements you are taking. If you were prescribed 8 different drugs to take daily, would you be concerned about interactions? Taking supplements, hoping that they will have some medicinal effect is equating them in hoped for effectiveness to prescribed drugs. So to be consistent, you should also consider possible side effects and interactions. I'm not saying that interactions between those supplements could be responsible for what's happening to your feet, but I recommend you stop taking them for a while to see if your feet improve. Still see your med team, but by cutting out your supplements for a week or so, you'll at least remove them from contention and make it easier for your med team to identify the cause.
I'm taking green tea and turmeric, but not on the same day (the limited testing indicates that these tend to interfere with each other if taken together and are best taken alternately). I also take vitamin D3 as needed as well as a couple of prescribed drugs, but they've been introduced one at a time and I haven't noticed any unusual side effects.
I hope you can find an easily remedied cause,
Neil
Good to know about the green tea and turmeric. I take both, now I think I will alternate or maybe just drop the green tea.
Of the supplements you are taking, only green tea has good evidence that it can reduce the CLL tumour burden for some patients via a small Phase II clinical trial. Turmeric shows activity against CLL cells in a test tube (in vitro), but lots of things do as CLL cells are fragile. It is nearly always the case that substances that test positive against cancer cells in a test tube, don't work in the body or have unacceptable side effects. The usual reasons they don't work is because of the difficulty of getting a high enough dose into the blood stream (digestion changes the substance, there's poor absorption, or the liver quickly breaks down the active ingredients), or tumour cells in the body are able to modify their micro-environment to nullify the effect of the active ingredient(s).
hematologyandoncology.net/f...
Neil
In vivo... you need high enough doses to get by the stromal protection and a constant ratio of 10:1 (EGCG:curcumin) was established as effective at inducing apoptosis in B-CLL.
Sequential use is imperative... otherwise the two compounds are antagonistic...according to this NIH study...
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