Hi I'm new here. Diagnosed Nov 2014 at age 47. I was starting a round the world trip with my wife in our yacht from Australia. We pondered the diagnosis for a year while we hung out in Thailand and decided that because I was 17p it would be wise to postpone our 10 year trip and instead return home - we didn't want to get part way around and then I needed treatment. (Yes it was a tough decision and I think if not for 17p we would have continued and just tried to speed things up a little). Anyway we are settled with our decision, only it takes time to sail back to Australia...we are currently in Bali. Due to being overseas I haven't been having regular physical checkups. The Doctors I have been seeing arrange the blood tests, look a little nervous and then send me packing. I feel fine and don't think I have anything too swollen in the lymph node dept. When diagnosed my Doc pointed out small lumps in my neck which seem to be about the same. Every three months I have blood tests done and send the results to the Doc in Australia - he is a haematologist I was referred to. My results have remained fairly stable WBC around 40, Platelets usually sit around 167. ALC 30-39. My wife and I have done a lot of internet research and often check healthunlocked. We feel like we have a bit of an understanding of what it's about, but are keen to discuss in more details with experts back home. The reason for this posting today is that my results in May showed a jump in WBC 60 and Platelets 113, ALC 55, Doc said redo in 8 weeks which I did WBC 79, Platelets 129 and ALC 69.5. He said to redo again in another 8 weeks which I will. He also said "Usual indication to start treatment is doubling of WCC in 6 months’ time. Also you need to correlate with clinical condition and symptoms." I know we shouldn't get hung up on numbers, but I thought if any number to watch it was the doubling time of ALC not WBC. Can anyone tell me what might be going on? I have also emailed him and will do the tests again in 2 months. I still feel great, no illnesses or infections. I won't be back in Australia until Nov/Dec this year (due to weather). If it's wise to see a Doc here in Bali - what sort of things should I get them to check? I'm sick of going to Docs and they just look at me - it's pointless going. I feel fine and am not concerned - should I be? Thanks in advance for any advice or suggestions someone from the community can make.
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