i just wanted to share my good news. After reading posts and advice on the forum i decided that i would not put up with what felt like poor care from my Hospital who discharged me with little to no advice or information
with the support from my GP i managed to get a 2nd opinion with a view to becoming again an outpatient. Although my bloods are low and i'm only on W&W i felt cast aside as a moaning hypochondriac.
I am pleased to say I am now an outpatient with Christies with a Consultant that is so helpful and makes me feel listened to. I no longer feel like a whinging hypochondriac as my symptoms are acknowledged even if there is no treatment. i'm now feeling that my life is in safe hands
part of this post is to share my good news and the other part is to acknowledge without the support and advice of you all - i would not have felt able to have improved my situation.
Many thanks and Best Wishes to you all
Loran🌻 x
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loran6t8
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That is great news. I'm so glad I didn't stay with the first oncologist I saw. He said I had 6 months and he would keep me comfortable. That was 9 years ago. It's always good to trust your gut. I too love this forum and the many kind people who share their stories and give us strength.
SO GLAD to hear this, Loran. Well done in pushing for better treatment - even if it isn't actual medical treatment as yet. Being listened to as a real person is very precious, and must surely reduce stress levels and be a factor in improving our health.
Hi Loran , I know that you must be happy . Life is to short to deal with people , medical facilities ,that just don't care. God bless you and long last W and W.
Pleased to hear your good news Loran. I too am looked after at The Christie, although unfortunately not treatment naive any more. I definitely feel at ease and listened too and jn good hands. Regardless of where I am in my journey I feel they are doing their best for me and we arecworking together.
Great result Loran! Well done you for being your own best ambassador of your health interests and obtaining the medical oversight you deserve.
I'm seeing my haematologist on Tuesday and frankly I'm in no mood for his paternalistic approach so will be asserting my wishes and making sure I leave there feeling listened to.
Good luck for Tuesday Newdawn. My 5 month (should have been 4 months but the appointment was changed at the last minute) on Wednesday. Will be interesting to see if all the meds I have been taking for AF have had an effect on my 'numbers'.
Thanks Loren, I will. Strange thing is I'm in so much pain with my torn shoulder and broken finger, the CLL has temporarily faded into the background so I hope I don't get any nasty surprises tomorrow!
Well done Loran, good to hear you are now being looked after.My brother in law is being treated at the Christies, not for CLL but for another cancer and he can't praise them enough.
Delighted for you Loran. I changed consultant and hospital mid chemo. It's not easy to do, and the support of a great GP helps a lot. We really do need to advocate for ourselves and get the best care possible. Kindness and care are essential - this disease is hard enough to live with, without dealing with a Doctor who just doesn't listen! Well done you and the very best of luck with W and W.
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