Hi All - I am posting on here hoping for some information on whether or not I may have CLL, or whether my symptoms sound similar to anyone else? I'm 34 years old and live in London, am an avid cyclist, and previously had a clean bill of health.
In Sept 2015, I had a routine blood test to test for Celiac disease. The results came back negative but also highlighted a raised lymphocyte count (around 5) and low platelet count. I also noticed raised lymph nodes in my neck and my armpit. Over the next few months I have been monitored and spent time in and out of my local GP having blood tests to see if the count would reduce. My platelet count has returned to normal but the lymphocyte count continues to hover around 4.5-5.0 (been upto 6.8).
During this time I have felt under the weather and at various times have suffered from indigestion (persistent), dysphgia, abdominal discomfort, continual floating stools, persistent itching of the skin (mild), bone throbbing (mild), ear ache, aching muscles, sore throat, anemia (mild), unexplained bruising on my leg (mild, I did show the GP but they didn't take it seriously).
I was referred to a Haemotologist in Nov/Dec who didnt seem overly concerned, in fact he almost gave the impression that he couldn't understand why I was referred. He did however send my blood for analysis (flow cymetry) and on return told me that I have Monoclonal B Cell Lymphocytosis (MBL) which from what I gather is like CLL but without the sympoms. He told me that they will monitor once a year.
Since the appointment however I have noticed a pain on my left side below my ribs which develops when doing any exercise above a moderate level. I suspect this could be my spleen. I had an ultra sound scan today and the GP said that my spleen was not 'medically' enlarged but he did say it was right on the edge of the upper limit of what it should be, he described it as bulky.
I have not had any drenching night sweats, fever or weight loss. The lump under my arm has disappeared but the neck lumps remain, albeit the haemotologist says these are only very slightly raised. The symptoms that I seem to be left with are; persistent itching of the skin, bone throbbing, slight aching of the muscles and pain around my spleen.
Aplogies if this is a long message. I feel I'm not getting great support from my local GP's and it is a lengthy process to try to get another appointment with a Hemotologist.
I would be grateful if anyone could provide any insight if this sounds like CLL or they have similar symptoms to this? The uncertainty is stressing me out quite a bit and has been going on since September.