Experience with Idelalisib (Zydelig) in CLL? A chance to can help fellow patients in Canada.

[bkoffman]

Hi Friends

I received an email today with a link to a survey lymphoma.ca/news/idelalisib... for those of us who have had experience with idelalisib. It is a chance to help our fellow patients with CLL in Canada.

Thanks

Brian

bkoffman.blogspot.com

[HAIRBEAR_UK Founder Admin]

Hi Brian

Thanks for providing our members the heads up and publicizing the LC survey to help Canadian CLL patients.

Following a request from LC to CLLSA last week this was posted here in the community healthunlocked.com/cllsuppo... by Lymphoma Canada ahead of the weekend and members have been able to support that survey.

Today CLLSA have posted the Canadian CLLPAG & LLS idelalisib survey details now that it is ready to help to support their submissions to Canadian government healthunlocked.com/cllsuppo...

You might want to circulate the CLLPAG/LLS survey too surveymonkey.com/s/K7GR5SM through your blog as each submission is considered separately by the appraisal committee, the more patient group submissions the greater the CLL patient voice.

To prevent confusion with so many surveys in the pipes for this year, CLLSA request that admin and or CLLSA are contacted by partners to authorize surveys ahead of their posting to the group.

Many thanks

Nick