Alagille syndrome & papildemia

[TammyC123]

Hi would any of use now of anyone has alagilles also affected with papildemia? Before xmas ollie was diagnosed through MRI and lumbar puncture tho csnt seem to get pressure down through medicine and noe going in again for repeat MRI and lumbar puncture would just like to get y talking to someone expecting something similar as dr qupte told me it's more comman with my sons condition ??

[Lois-Cldf Partner]

Hi TammyC123, are you signed up with the children's liver disease foundation?

Lois x

[TammyC123 in reply to Lois-Cldf]

Yes lois were from Belfast weve meet you before at clinic when dr gupte comes over x

[Lois-Cldf Partner in reply to TammyC123]

oh Hi Tammy!!!! xxx