Amazing

[Molly__G]

Hello your story is amazing. To know there is someone at your age who has survived. My son is 8 and doing well. Your story give me hope that he may live a long life without needing a transplant. Please give an update on how you are currently doing.

[Abc_123456]

Hi

My baby is 7 months and she is diagnosed with biliary atresia

We have not done kasai treatment or any other

I am giving only medicine for liver which doctor has provided

I am so scared do not know why it happened to us

How is your baby doing

please share your experience

[ja3fer in reply to Abc_123456]

Why the child did not do Kasai !!!

[Abc_123456 in reply to ja3fer]

I am hoping my baby will be fine soon. Everything upto GOD

[Molly__G in reply to Abc_123456]

I have never heard of a baby diagnosed with biliary are not having a kasai procedure done. This is strange. Can you share the reason why it was not complete? Does the baby have jaundice? Is the bilirubin levels high? Liver functions high? What have the doctors done other than give medicine? Also do you know the medicine name?

[Abc_123456 in reply to Molly__G]

I dont want my baby to undergo any treatment as kasai doesnot have 100% success rate neither liver transplant

So i am just hoping and praying to god that my baby will be fine soon

She is pale and her eyes are yellow

[ja3fer in reply to Abc_123456]

Please forgive me .. I have come to the right of your child .. Kasai is the first solution and transplant is the final solution to this disease. No medicines cure biliary atresia ..... My son did Kasai a year ago and removed from jaundice and there are successful operations lasting a long life .. We do not have the future and we have to take the reasons .. Do not injustice your child

[Abc_123456 in reply to ja3fer]

I know no medicine will cure it. It is duct which shud be there and is not present in my baby

How unfortunate!

Prayers never go unanswered 🙏🏻

[Abc_123456 in reply to ja3fer]

How is your baby doing?

My baby looks so pale and itches alot

From where have you done the kasai treatment for your baby

[Molly__G in reply to Abc_123456]

If you do not undergo the kasai procedure transplant may become they only option once the liver is too damaged. Yellow eyes and itchy skin are both signs of liver failure. Usually babies have the procedure done as soon as they are diagnosed. Have the doctors agreed not having the kasai is a good option? There is no 100% cure. My son is not 100% cured. But his liver is functioning. He has no itchiness, no yellow. Skin or eyes, the only way to know what's going on with him is through bloodwork. I strongly advise you reconsider a surgical treatment plan. May I ask where you live. There are doctors who have higher success rates than others. If you go to a hospital with a pediatric transplant center they will more likely have doctors who are more experiened with biliary atresia.