I'm devastated. Today I was told my 7 year old son has Liver disease. Despite a few issues he seems so healthy and happy at the moment. How do I tell him? What do I tell him?
I did a bit of searching and was ill from reading the stories of how this disease degrades and the terror of watching your child decline.
We were offered no counselling, and the gastro, who I have only met once told us to come back in three months. It was matter of fact and technical. No real discussion of the future, just a wait and watch approach. How do you cope?
Where do I start?