Help with regard 2 claiming dla and r... - Children's Liver ...

Children's Liver Disease Foundation

2,021 members705 posts

Help with regard 2 claiming dla and r u entitled 2 it

Puds18 profile image
4 Replies

Hi my daughter was diagnosed. With ba at 3wks had kasia surgery at 4 wks old she doing really well and slowly putting on weight but doctor seem fine with that at minute reason why I'm writing this is we were told 2 apply for dla for her but read few storys ECT and read on dla website that liver disease is not classed as a disability could anyone help me as it was kings college hospital that told us to apply many thanks

Written by
Puds18 profile image
Puds18
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Skibud profile image
Skibud

You’re totally entitled to it so yes apply. The social worker at kings will be able to help you & Cldf provide advice too x

Hi Puds, To qualify for DLA you need to prove that your child need more and prolonged attention compared with another child of the same age. If a child is under one years of age this is very difficult as all children under one need continues care and supervision. We do have an information pack should you decide to apply or you can give me a call at the office and I can give you more information.

Best wishes - Jacquie

Puds18 profile image
Puds18 in reply to

Ok thank u I give u a call in few days so they wouldn't class taking meds 8times a day been weighed weekly by health visiter taking into account zadie 4months old and also going 2 kings college hospital every 3 minutes month for liver reviews and scans being on a special milk only just having all her new born jabs so dla would say that she a normal 4month old think dla need 2 look into billary artresia sorry for the rant but think it's stupid how us as parents have prove that r daughter is different from any normal child under one

I totally understand your rant but unfortunately you do have to jump through hoops. I am not saying don't apply but be prepared to be refused but we do have a really good information pack to help you complete the form which I must say is a daunting task in it's self. I am in the office today and tomorrow but then away. regards Jacquie

Not what you're looking for?

You may also like...

Diet

Hi, mi 6 months old son is about to start eating solids. He has biliary artresia and a kasai done...

Kasai operation

Hi can some one help me my baby has kasai operation 9 weeks old and now its starting 2 nd week...

My baby was diagnosed with biliary atresia at 6 weeks got a Kasai at 7weeks, it has been such a scarey and emotional journey.

He is now 4 weeks post Kasai and doing really well feeding and gaining weight. I would love to hear...

Looking for positive outcome stories after Kasai procedure.

Hi, I'm simply looking for hope ... My son was diagnosed with BA at 51 days and got kasai at 53....

My daughter is 6 weeks post kasai (9weeks old) and her stools have gone pale, anybody with any experienc? Is it a sign of kasai failure?