Hello, our 2 1/2 year old has been poorly on and off for about a year. Just looking for advice!
He has had constant diarrhoea, sporadic vomiting, enlarged lymph nodes and occasional fevers of no obvious cause. I have felt for a while that something is not right. I'm not the type of mum to rush to the Drs and am usually quite laid back about health issues. He is our third child and we are both physios so have good clinical background and know what is normal/not normal!
He has been admitted to hospital twice in last 6 months, first time with severe tonsillitis and lymphodenopathy (6 months ago) and then with acute back pain and fever (1 month ago). He had an MRI of his back and abdo ultrasound which was clear.
Separately, due to persistent diarrhoea he was referred to Gastro consultant in June 2014 and we saw a reg in August. He did loads of bloods, we came back in October and I mentioned that he had been having night sweats and back pain, but the reg (a different one) brushed me off and told me all kids get diarrhoea and he didn't deal with any other symptoms that were not GI related (what an idiot!). By this point Jonah had been anaemic (despite supplementation) and vitamin d deficient for 2-3 months but reg did not do anything about it.
A week later our little boy was admitted for 3 days with the back pain and fever. Once discharged he became unwell again with really high fever, no obvious cause and very lethargic. I insisted we see a paediatrician again (we'd been lost to follow up from the hospital!) and she was brilliant and looked at all his past results and examined him for over an hour. She said he has a heart murmur and a few enlarged lymph nodes still, plus she was concerned re his vitamin d, and he is very pale at the mo. He is also itching all the time which worries me.
Our consultant rang last week to tell me he is positive for hepatitis but she doesn't think its a viral cause. So last monday they took a load more bloods and we are waiting! Has anyone else had similar experience or have any advice??
SO much appreciated!! Thank you