Cholangitis

[Yuie]

May i know what is the cause of cholangitis and what is the early signs and symptoms?

[Caitlin-CLDF Partner CLDF]

Hi Yuie , we have more information on cholangitis on our website: childliverdisease.org/liver...

[vint]

Hi

As Hannah said look on CLDF website esp for causes.

Our daughter always presented with a high temp and sometimes pale stools. Each child is different.

Most important thing is if you are worried get it checked out. It's better to get checked out and everything be OK then not. 9/10 times we were right and she was treated for cholangitis.

She has t had cholangitis for 5 years but constantly had it in the first three years of life.

Hope that helps.

X

[Yuie in reply to vint]

My baby being admitted to ward, diagnosed with cholangitis, her fever is slowly fade away, there’s a time it’s gone and sometimes it’s doesn’t gone away. Her poops turning to yellowish color again, but we need to stay here for 1 week fot her to finish the antibiotic, i just curious, if the cholangitis means the kasai isn’t working?

[Heyladydee in reply to Yuie]

Sending love your way Yuie! Happy to hear that your baby has yellow stools! I’m still waiting for my baby to have that color stool. It’s been 1 month since kasai.... doc recently indicated the kasai isn’t working for my boy but I’m praying he will turn around soon. Sending lots of love and prayers your way for baby!

[Yuie in reply to Heyladydee]

Your baby has cholangitis too?

[Heyladydee in reply to Yuie]

No my baby does not have cholangitis. He only has the pale color stool. ☹️ hoping it will turn yellow or green soon

[Yuie in reply to Heyladydee]

My baby has cholangitis she being admitted to the ward almost a week now, for the past 2 days her poops show a pale color stool, then it’s turn to a greenish mixed with a yellow color stool, but yesterday we noticed that her poop change to pale color again..

[Euntaeng in reply to Yuie]

Every baby presents cholangitis in a different way but most common symptoms are: high fever, abdominal pain, lethargy, decreased appetite, and change in stool/urine color. My baby was recently hospitalized due to cholangitis and discharged after about 1 wk. Best wishes for your baby!

[Yuie in reply to Euntaeng]

How’s your baby now? My baby having those symptoms to.

[Euntaeng in reply to Yuie]

I think my baby recovered pretty well. He is back to home and still getting meds through picc line. He is back to normal. Those symptoms resolved right after they started iv antibiotics except not eating..

what about yours?

[Yuie in reply to Euntaeng]

My baby just discharged from hospital, her fever is going down already, her appetite also back to normal but the only problem now is her stool is still in a clay color even she already finished her iv antibiotic for7 days

[Euntaeng in reply to Yuie]

Howz liver enzymes and bili level?

[Yuie in reply to Euntaeng]

Her bilirubin is not that high same with the liver enzymes also not that high but her stool until now is still in pale color

[Euntaeng in reply to Yuie]

A. it is not easy,, hopefully you will see more colors on his stool soon..

[Yuie]

Great news my baby poops finally turn to bright yellow color, after 10 days of antibiotic