Hi,I have a little boy who is 2 now. Healthy labor and delivery but cried all the time. We thought he was colic at first but then around 4mos he started scratching. So we went though all possible allergies and antihistamines. Then at 8 Mos he started to get jaundice and bruising we were rushed to the hospital. Lots of testing, mris, and biopsies. They got one positive test for pfic1 but have yet to find a second variant to dignose him. We just saw a gentics doctor and had xnom testing done (still waiting for results ) he had an external biliary diversion done 2 months ago it helped his labs,but still very itchy ,not sleeping and abnormal liver function. He is struggling to gain weight and have vitamin deficiency. Sorry it's so long! It's great to know their are other parents dealing with similar problems!