My first little baby boy has biliary atresa. Born on the 11th November 2013. We was only home for a week then was back into hospital at Kings. He had a Kasi at four weeks. I've never heard of this before and I'm not dealing with things well, I'm not sure how to cope. I love him so much and I'm scared to lose him. Can anyone who's been through this message me, I would please like to hear anything positive.
My boy has been to his first appointment where they said his liver function bloods were still the same but jaundice has gone down.
They said that it can take six months for it to go down.
I can't stop thinking of things and finding it hard to deal with everyday things. Sometimes I blame myself and wonder what I've done. I'm twenty eight and this is my first baby and my labour was very traumatic to. 72 hour labour ending in forceps. Xx