Hi I just wanted to see if youd like to join our support group on Facebook
We have some really amazing members with valuable experience and advice to offer
If you would like to meet other families with very rare conditions and are not in the UK it's possible that I can connect you to another parent who maybe able to offer some help and advice feel free to comment send me a private message x
Portal hypertension, enlarged spleen and liver damage 
20 days post kasai liver biopsy report
Does elevated conjugated bilirubin in newborn always mean liver disease?
Chances of liver disease in subsequent child
Elevation of liver enzymes in Alagilles 
