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Children's Liver Disease Foundation

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stuartwainwright profile image
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I've just signed up to Health Unlocked after hearing about it at the CLDF Conference last month. My son has biliary atresia and has had a liver transplant aged 2. He is now 12 and we look forward to his 13th birthday in the coming weeks. He is generally well now after some blips over the last 10 years.

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stuartwainwright profile image
stuartwainwright
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Good to hear your son is doing well and welcome to Health Unlocked!

Our son had a transplant a year ago and is full of energy now, great to see. He enjoyed the conference too.

Happy birthday!

Hey glad your son is alright. My Daughter Tiffany was transplanted last Nov. She is B.A failed Kasai. She was 7 months old when transplanted and so far so good! I know she will have a few blips along the way but she seems so well in her self at present and we're just grateful for the here and now! I was also at the conference and found it such a good place to mix and mingle. The kids loved it too

so lovely to see new people on here supporting each other, spread the word - Jacquie :-)

laniepugak profile image
laniepugak

Hi this is my first to post after singned up to Health Unlocked .Im from Phil. I have a twin baby girl and one of them diagnosed biliary atresia , she was operated last 2015 of April for KAsai but unfortunately was not successfull for it was late, she was 4 mos. the doctor recommended for liver transplant ,until now we did not yet made a transplant , i just wanna ask what is the best milk for her and vitamins for she only maintained godex and ursofalk as of now...

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