Twin born with TTTS and liver failure. Dr's didn't even know that something was wrong with my son until he was 5 weeks old. He had been home from the nicu for 5 days and was still a weird Yellow grey color so I took him to the er. He looked so bad. We got the run around for many months until I got ahold of a pediatric liver specialist in salt lake city. She said to call childrens Hospital in Minneapolis and tell them to get him in NOW or I would be taking him to Salt Lake. Finally at 4 months they did the testing for BA and it was negative. So we went to do a liver biopsy at 14 months. The cancelled that while we were waiting. His blood work had came back better than it ever had before so they didn't want to take the chance of bleeding. They now thought that he had cirrhosis. We have no idea what was wrong with him or how he got better but he is now almost 5 and his blood work has been perfect. My question is, has anyone else ever had this happen and had problems later in life? This is the only photo that I can find of him on my new phone.
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