I was diagnosed with Biliary Atresia 2 months after I was born, I lived in a small town and the doctors there had no idea what was wrong so I was transported to Iowa City, where they informed my parents about the disease, there was a doctor from England who knew a little bit about the disease and told my parents about the kasai procedure and informed them that they had tried it on a couple other babies and they did not make it, so by allowing them to perform the procedure, I would likely not make either.
long story short I'm 30 years old and still living with my native liver, was having so issues in 1987 but nothing since then. I would love to hear from people who have been living with there native livers and over 30 to know how your doing and if you have had any issues.
Written by
courtney1985
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