Born with Biliary Atresia

I was diagnosed with Biliary Atresia 2 months after I was born, I lived in a small town and the doctors there had no idea what was wrong so I was transported to Iowa City, where they informed my parents about the disease, there was a doctor from England who knew a little bit about the disease and told my parents about the kasai procedure and informed them that they had tried it on a couple other babies and they did not make it, so by allowing them to perform the procedure, I would likely not make either.

long story short I'm 30 years old and still living with my native liver, was having so issues in 1987 but nothing since then. I would love to hear from people who have been living with there native livers and over 30 to know how your doing and if you have had any issues.

2 Replies

  • Hi , Thanks for sharing your story. Glad to hear you are doing well.

    Just for clarification, did you had a Kasai ?

    I have a son with BA and he had his kasai when he was 4 months old.

    He will be 5 on Saturday and is stable with his native liver.


  • I would love to know more sbout this

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