Diagnosis Day.: Today the biopsy... - Children's Liver ...

Children's Liver Disease Foundation

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Diagnosis Day.

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Today the biopsy results came back.. biliary atresia is the cause of all this......

Tiffany will come home tonight then be back up kings next week for her Kasai. We just hope and prey everything goes right for our baby girl x

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Blazer profile image
Blazer

Sending best wishes at this scary time. The team at kings really are amazing and she will be in the best hands. Blake is now 2 and doing so well... Yet I remember the uncertainty that comes with diagnosis and the best advice I was given was to enjoy your baby. It is so easy to become consumed by it all but you have to trust the professionals and be there for each other as a family. Really hope and pray that all goes well next week. X

vint profile image
vint

Try to enjoy your time as a family. I know you probably want to hide away and grieve this news. We always give ourselves 24 hours to cry, scream and feel sorry for ourselves then make ourselves do what's normal for us as a family. Take loads of photos doing normal family things and live life with BA not a BA life.

Keep your little one well hydrated, stick strictly to the med regime and above all spoil her with cuddles.

The kasai is a scary time. It took over a week before we got seaweed! Whatever the future holds stay strong and trust in yourselves.

Take care and sending good wishes.

LisaLockley profile image
LisaLockley

It's a scary time, but I promise it gets easier to breathe... She's in amazing hands and she'll blaze her own trail.

I've seen Tiffany's photo on liver mums and she is beautiful!

Will be thinking of you on Tuesday!

Lisa Lockley & family

Victoria2 profile image
Victoria2

I hope the surgery went well for Tiffany. The great thing is they have this surgery now. Hugs xx

Hey. The surgery went as well as hoped. Now just praying it works as long as possible xxx

Glad to hear it went well, should you need anything give us a call or have a look at our families Facebook page.

facebook.com/families.cldf/...

Isabella1 profile image
Isabella1

So scary.. hope you are all doing ok. Freya is 9 now after Kasai at 5 weeks, and full of beans..we have learnt to take one day at a time x

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