High cholesterol : This is my first post... - Cholesterol Support

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High cholesterol

hallmelody profile image
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This is my first post. I am 32 years old and I have hypothyroidism too. I was initially found to have high cholesterol back in 2016. My HDL level was 5.8 (<5.0)

I have also been getting white plaques of skin around my eyes, the nurse said that is indicative of high cholesterol and I have had those since then.

The nurse said she would usually advise me making food and lifestyle choices but because those factors were ok and that I was of low weight at the time those were not applicable to me.

My hypothyroidism is being treated with Levothyroxine and high cholesterol is present in my mum and nan so seems to be genetic? Also family history of heart disease and stroke

Thanks for any light that can be shed on this problem I have.

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hallmelody
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22 Replies
Coastwalker profile image
Coastwalker

High cholesterol is linked to Low thyroid, Doctors years ago knew this and would give those with High cholesterol NDT - Natural Dessicated (pigs) Thyroid a natural medication till they felt normal, cholesterol usually went down. as their low thyroid normalized. Low thyroid has an inverse effect with high cholesterol. So hopefully when you are eventually balanced in your thyroid bloods your cholesterol should also normalize too.

Sadly this history has oddly or conveniently been forgotten in favor of handing out statins. My Mum I believe was over looked for low thyroid, eventually found to be low thyroid, then not given enough thyroid medication, put on a statin which tipped her into having Kidney failure and having to have dialysis 3 times a week in a hospital miles away from home. Kidney failure, heart problems,, dementia, altzheimers and strokes are all well known now to be caused by statin drugs.

sos007 profile image
sos007Ambassador

You indicated that your HDL was 5.8, that is unlikely your HDL, it is probably your total cholesterol level. HDL is considered the 'good' cholesterol and is usually in the range between 1-2 mmol/l.

Hypothyroidism may be genetic or it many not be. Some people develop it due to poor dietary and lifestyle choices.

Daily exercise can improve thyroid function naturally along with a Mediterranean Diet which emphasizes a whole-foods, plant-based regimen, while limiting sugars, eliminating packaged foods, and limiting simple carbohydrates (white flour products, rice, potatoes).

Fried foods are also eliminated.

Many people assume their medical conditions are always genetic when in fact there is a phenomenon called 'epigenetics' which suggests that dietary and lifestyle choices can improve your health in spite of your genetic predisposition.

Exercise is critical and the easiest form of exercise is walking - 30 to 60 minutes per day.

If you wish to read about my own health journey click on the link below:

healthunlocked.com/user/sos007

Good luck.

hallmelody profile image
hallmelody in reply to sos007

Thank you, I am active throughout the day so exercise is not my issue. I just don't understand why I have high cholesterol

sos007 profile image
sos007Ambassador in reply to hallmelody

There's a difference between 'activity' and 'exercise'. Exercise requires a sustained elevated heart rate above 120 bpm for at least 20 continuous minutes.

In addition, sugar and simple carbohydrates foods as well as stress cause inflammation in the body which illicit a cholesterol response.

Cholesterol production increases in the absence of vitamin C. Try 3000 mg daily. I take much more. Read up on Linus Pauling.

Bet117 profile image
Bet117

Hi hallmelody!

Welcome! You have come to the right place; great, knowledgeable supportive people who wil always respond.

I totally agree with Londinium about the reference ranges and all that she has posted to you. She is incredible! I am going to watch her videos as they look great!

Yes, thyroid does run in families. I have Hashimotos Hypo Thyroid; diagnosed at hmm age 40 or so via blood tests and some constipation.

My maternal grandmother had it as well and lived to a ripe old age of 99 with it. She was on a dose lower of synthroid than I was. My maternal Aunt and her daughter both have it do my Mum's maternal cousin and her granddaughters; one diagnosed at age 14 after a celiliac diagnosis.

I have had continuously not severely elevated cholesterol for years which was monitored by my endocrinologist. For some reason, in Sept. of 2017 he decided to put me on Rosuvastatin 5mg.

I started with a back discomfort at my right rear rib. I was also spilling protein in the urine which is a side effect of this medication. I have normal to low normal BP as well.

( Google Drugs.com and check it out!)

It did lower my cholesterol but not vastly considering I became vegetarian.

I was removed from the Rosuvastatin 5mg. prior to a kidney biopsy in April 2017 where it was discovered that I had Membraneous Nephropathy, an autoimmune kidney disorder.

After biopsy I refused the Rosuvastatin and was put on Atrovastatin 10mg.

My cholesterol dropped less than with the other drug.

I suffered unmercelessly with the right rib back pain for 8 months until I finally convinced the endocrinologist to take me off the statin. Within 3 weeks the pain subsided.

My thyroid went more hypo with that statin. My endocrinologist believed that it was a med reaction to calcium that I had been on for 6 years without issue.

I moved the calcium to pm and the TSH improved and then jumped up again in March.

In April, the endocrinologist finally moved the Synthroid up and it has been normal.

I did see my GP in December March, May and my annual physical in July about all of this. Shedid her labs and was not thrilled.

Cholesterol:

December 2017-330 total

June 2018- 242 no statin

My LDL is 131 ( reference range is 0-129)

Both my GP and Nephrology Consultant want me off statins at present.

Since upping the synthroid my TSH, T3, T4, Ferritin, Folate, and D are well in the normal range as noted by my GP in our local hospital and my new Renal Consultant from a vast urban teaching hospital.

My B-12 is high as I have been taking too high dose of that supplement. I am not taking it for a bit.

My GP will follow both my cholesterol and thyroid. In addition, I will ask my nephrology consultant for a recommendation as to a new endocrinologist. Disappointing after 14 years.

As you can imagine it has been a journey, but I feel good, eat healthily, go on with my day and remain positive.

Yes, they do note family history but evaluate based on each person. Keep in mind that we are all different and respond differently to medications.

It is important to communicate with your consultants.

Please keep in touch and let me know how and what you are doing. Stay strong and positive!

I will always answer.

Sincerely,

Bet

Bet117 profile image
Bet117

Hi Londinium,

Thanks for responding. You are wonderful!

Actually, at the time that I was suffering from the back pain, my vitamin D was a bit high as I take Calcium Magnesium Citrate Liquid with D3 for my IBS; the only thing that works and not a drug. It also added bone density to my osteoperosis

( also familial) that my consultant has discharged me for 2 years.

My then nephrologist's student threatened to hospitalize me for elevated D in February 2018, not noticing in November When questioned as to why this was not re-tested since August 2017 if there was issue, the response was

" we do that once per year".

I stopped it entirely and the D is now normal, but calcium and magnesium low.

GP started me on the liquid but 1 tbsp. Labs are fine and regularity has returned.

The back pain- followed

instructions and saw my GP in December 2017

to find skeletal muscular swelling in that area; a documented side effect of the Atrouvastatin as well as a feeling that I was allergic to something in those two statins, the Rosuvastatin given in Sept. 2016 and Atrouvastatin given in April 2017 - the most powerful of all statins. I did take COQ10 while on the statins.

None the less, I was assigned the heating pad by my GP. and it helped with the discomfort.

As far as my B-12, I have to reduce it as it is over 1,000 due to the supplements taken.

Not easy and could have been avoided...

I am very grateful to you for pointing out the importance of a folate, ferritin and B-12 testing in addition to TSH T3 and T4 . My endocrinologist had not looked at the first 2 since 2008, so I am pleased that both my GP and Nephrology Consultant have this month.

I am going to watch your suggested videos and will discuss them with you.

Again,

Thank You!

Bet

Marz profile image
Marz

Whilst supplementing B12 - testing is of little value as results will be skewed. The test result you have is both bound and unbound B12 and only around 20% of your result is available to travel to the cells where it is needed ! You may wish to take a GOOD B Complex to maintain levels and keep all the B's in balance. B9 works with B12 in the body. You cannot overdose on B12 as it is water soluble ....

hallmelody profile image
hallmelody in reply to Marz

Thank you. Sorry I do not supplement B12.

Marz profile image
Marz in reply to hallmelody

Apologies - my reply was intended for Bet117 above 😊

hallmelody profile image
hallmelody in reply to Marz

TSH 4.28 (0.2 - 4.2)

FT4 16.1 (12 - 22)

FT3 3.2 (3.1 - 6.8)

Ferritin 17 (15 - 150)

Folate 4.1 (4.6 - 18.7)

Vitamin b12 210 (190 - 900)

Vit D 40.5

Marz profile image
Marz in reply to hallmelody

Your TSH is far too high and on treatment should be around 1 or under. Your FT4 needs to be higher in the range and as you can see the most important ACTIVE hormone is at the bottom of the range - the FT3. This is why your cholesterol is raised as your metabolism is low. Your FT4 is not coverting well due to your Ferritin level - which needs to be around 70. Folate in BELOW range and your B12 needs to be over 500 to prevent neurological damage. VitD is good at 100 ++

So how is your GP dealing with these dreadful nutrient results ?

How much Levo/T4 are you taking ? Have you had your thyroid anti-bodies tested - TPO & Tg ? It's much later here in Crete - so if I do not see your reply tonight I will see it early in the morning :-)

thyroiduk.org

hallmelody profile image
hallmelody in reply to Marz

TPO antibody 277 (0 - 34)

TG antibody 308.3 (0 - 115 negative)

I am only taking ferrous fumarate 210mg once a day

Thanks

Marz profile image
Marz in reply to hallmelody

Raised anti-bodies confirm Hashimotos - the most common thyroid condition. It is auto-immune in origin so good to look at being gluten free to begin with ... It is also the reason for poor absorption of nutrients ...

Bet117 profile image
Bet117 in reply to Marz

Marz..

You are wonderful!

ShinyB profile image
ShinyB in reply to hallmelody

Hi :) I too have high cholesterol and a family history of early heart attacks. Since discovering the thyroid link and taking T3 my cholesterol levels have started to come down. (Not that I think cholesterol is harmful, quite the opposite).

Your fT4/fT3 ratio is just over 5:1 so it looks like your body is not doing as well as it could be at converting the T4 in levothyroxine to the active thyroid hormone T3. Your nutrients need to be optimal to help conversion.

TPO antibody 277 (0 - 34),

TG antibody 308.3 (0 - 115 negative) These results show you have hashimoto's which is an autoimmune form of hypothyroidism. Have you been told that?

Pop over to the Thyroid Uk section of Healthunlocked, and post your thyroid results to get some more input from others too :)

hallmelody profile image
hallmelody

Thank you, I do not have corneal arcus. I have TSH FT4 FT3 done I will post them

hallmelody profile image
hallmelody

I have been tested negative for diabetes, but have resuls for ferritin iron folate B12 and D, thank you

hallmelody profile image
hallmelody

HbA1c 37 (<40)

hallmelody profile image
hallmelody

Nmol/L

sandybrown profile image
sandybrown

Exercise heart has to be calculate, I am afraid, not just any number, as a 32 year old person using you age and a number that has been designed , you can calculate.

Have a look at this link:

bhf.org.uk/-/media/files/pu...

Your exercise heart range is between 94 and 132.

kathy24 profile image
kathy24

High cholesterol level leads to increased blood pressure, coronary heart disease, stroke, peripheral arterial disease, and Type 2 diabetes. Cholesterol can be treated with healthy diet in addition to high cholesterol. Daily diet must include fruits, salads, oatmeal as suggested by Dr. Janet, nutrition, health and fitness expert. To keep an easy track of the meals consumed one can use health related app like the Choletserol Down app. This is the fastest way to lower cholesterol. Follow the bad cholesterol reduction diet advised in the app and reduce cholesterol without statins. You can reduce LDL cholesterol by as much as 47%. All the best

sandybrown profile image
sandybrown in reply to kathy24

human body needs cholesterol to fully function!

"coronary heart disease, stroke, peripheral arterial disease", this can happen to any one any time!!

Type 2 is all to do with high living!

Blood pressure not sure?

Watching out for hidden and free sugar can help towards a healthy life.

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