FH?: Please tell me what FH is? I've... - Cholesterol Support

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FH?

vivbr profile image
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Please tell me what FH is? I've high cholesterol for years now, just started on statins; follow a healthy diet and exercise every day. I hope to bring down the statins and then perhaps go on to something less chemical, more natural. All ideas are welcome. I was told my high cholesterol levels are hereditary.

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vivbr
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Penel profile image
Penel

This video was posted last year. Hopefully the members with FH will be able to give you more information.

healthunlocked.com/heartuk/...

sandybrown profile image
sandybrown

High cholesterol? What ate the blood test numbers?

vivbr profile image
vivbr in reply tosandybrown

Total cholesterol 7.74 mmol/l (should be inf. to 5.2)

HDL 1.66 mmol/l (should be sup. 1)

LDL 5.4 mmol/l

tri. 1.49 mmol/l (should be inf. 1.7)

How does that look to you?

I always thought that I was borderline, but a professor (big knob) told

me to get my statins and to not hesitate or play around with these high results!!!

So doing as I'm told, taking statins for the moment to lower the levels.

sandybrown profile image
sandybrown in reply tovivbr

Your numbers are in single figure for total cholesterol, statin can bring the total cholesterol down but at what cost?

Food intake control and regular exercise may help with all the three blood numbers, BP, blood glucose and blood cholesterol.

The video clip numbers are in USA numbers therefore you need the conversion number to change from one unit of measurement to another unit!

What is Familial Hypercholesterolaemia (FH)?

Familial hypercholesterolaemia (often shortened to FH) is an inherited condition which leads to exceptionally high cholesterol levels, often double and sometimes four times those of the general population.

Look at the comment, twice or four times the general population number.

lillywhites profile image
lillywhites in reply tovivbr

please research niacin B3 it has worked for me and my family take care

vivbr profile image
vivbr

Interesting, I suppose that the FH side is what I have, doctors say so; however the diet, exercise, weight control all that is already done and being actively done now on NHS. I weigh 74 kg, 63 years old and pretty active. So I suppose I'm on the right road, but then statins will do what for me? Shall do a test for effort for heart soon and then shall know more. I dont trust the usual doctor solution take medecine and I'm protected... maybe I'm exaggerating but then I have reasons not to trust them at all times. Being an ecologist and healthy eater for so many years, avoiding chems. as much as possible is my answer but then I'm in good health I suppose. Long winded answer, sorry!

sandybrown profile image
sandybrown in reply tovivbr

Is your doctor sending you for a (FH) clinic for more blood tests?

YvonneD profile image
YvonneD

FH = Familial Hypercholesterolaemia.

Familial = inherited; runs in families

Hyper = too much

Cholesterol = one of the many fats that our body needs to function correctly

Aemia = in the blood.

So FH means you inherited a faulty gene from one (or occasionally two) parent which means your body makes more of this particular type of fat than it needs and the excess can lead to early death from heart attack or stroke.

Fortunately, since this condition was discovered over thirty years ago, there have been many ways learned to cope with it. At about the same time a charity was set up by people suffering from this condition which has now become HEART UK and they will be able to answer your questions.

If you want a non-chemical treatment, I would suggest Kyolic tablets from your local health Food Store. They work for me and have no side effects.

DakCB-UK profile image
DakCB-UK in reply toYvonneD

Could you reply with the full details of the Kyolic tablets, please? They make quite a lot of them: kyolic.com/product/products/

YvonneD profile image
YvonneD in reply toDakCB-UK

I first took 100mg daily then, over the years, as I went through the menopause and the natural protection my hormones had been giving reduced, my total cholesterol levels began to rise so I increased my dosage gradually up to 600mg. Eventually I agreed to try statins (20mg simvastatin) and came off Kyolic for a few years but, as my total cholesterol started to creep up, rather than increase the statins, I reintroduced the Kyolic and now take 300mg so the two together - combined with a healthy diet keep my levels in the almost acceptable range for a woman of my age:

Tot chol 4.1

LDL 2.3

HDL 1.3

RATIO 3.2

My belief has always been that it is my body and my life and I am quite happy to experiment with different recommendations until I find what works for me. My GP is there to advise and, where he sees fit, to prescribe.

DakCB-UK profile image
DakCB-UK in reply toYvonneD

Thanks, but which of the confusing range of products is it? Formula 100?

BryanDobson profile image
BryanDobson

Great that you are doing all the right things. The important thing now is look after others. Siblings and children should be tested if they havent already. FH has a 1 in 2 hit rate. Your relatives need testing to see if they have it too

vivbr profile image
vivbr in reply toBryanDobson

thanks, my kids already know as both their parents have cholesterol problems. Probably both FH

sandybrown profile image
sandybrown

Hi,

Thanks. I did not write my comments. when I goggled "What is FH?" I was taken to number of sites and one of them was HUK.

This is a copy and paste from HUK site.:

What is Familial Hypercholesterolaemia (FH)?

Familial hypercholesterolaemia (often shortened to FH) is an inherited condition which leads to exceptionally high cholesterol levels, often double and sometimes four times those of the general population.

I am afraid I am no expert to write but I can look for information then provide a link or do copy and paste.

Clericus profile image
Clericus

Hi vivbr, I have recently been tested for FH having been clinically diagnosed some years ago.

As Traci said you do not have to have mega high cholestrol readings. This is passed down to you from one or, very rarely, both of your parents. If your consultant can you refer you to a genetic clinic for a definitive test then you will know for sure.

I was given a booklet produced by both BHF in association with HEART UK called Life with Familial Hypercholesterolaemia which you may be able to get from BHF website.

Hope this helps.

Frank

vivbr profile image
vivbr in reply toClericus

THANKS

sandybrown profile image
sandybrown

I am sorry to say that Heart UK site on (FH) needs checking, this is because my information came from HUK site.

sandybrown profile image
sandybrown

There is a new post came in an hour ago, gives a lot of information.

vivbr profile image
vivbr in reply tosandybrown

Where would that be?

sandybrown profile image
sandybrown in reply tovivbr

Poster bigleg, at the moment it is 4th in HUK list.

vivbr profile image
vivbr in reply tosandybrown

thanks

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