Hi. Bad things: Our cat Poppy died. Nigel keeps wondering where she is and tells our carer that he does not think I know. Apparently the cat buried in the garden was one that fell off the roof but not Poppy. The day care rest home has once more said that they cannot accommodate Nigel as he gets too agitated. As he was recovering from yet another infection this was sort of to be expected and I would have thought that they should be able to cope with it. I had a meeting with them and found that they were not supervising meal times and that he was still being given some unthickened drinks so I agreed with them. I have subsequently had him home with me every day for the last week so not been able to get out as I still cannot manage his wheelchair.
Good things: I am much more mobile and started driving again this week. I still have to be careful about bending and lifting but we have managed with some innovative ideas: Nigel cannot rise from lying down without a lot of help so I now put the electric bed as high as it can go then tip the foot end down right down so that he can slide down the bed and out of the space at the bottom between the bars and the foot board. He can then use the bar and foot board to pull himself up so that I do not have to pull. We call it his 'bum skiing exercise'. 2nd good thing: I found that the nutilis shaker often leaked when I was thickening drinks. I was rinsing out a tomato ketchup squeesy bottle and realised it did not leak at all. It works an absolute treat and easy to hold. 3rd good thing. I introduced a friend to the super neurologist I had found in Southampton and her doctor referred her husband, who has PSP, to him even though they, like us, are out of the neurologist's catchment area. He prescribed Amantadine for John and my friend says that it is almost as if a light switch has been turned on, with improved mobility and speech. Isn't that lovely? It did not have the same affect on Nigel but maybe it is slowing down his progression. 4th good thing I have found another home who will take him one day a week which will be able to meet all his needs. I was impressed and Nigel liked it and they do singing two afternoons which he would enjoy I hope. He can start there the week after next. Sadly double the price but think it will be worth it but it will only be one day a week. Hope that you all have some good things happening too. We certainly need them to keep going. Love AliBee x