Don’t THINK Things Could Get Any Worse For ... - Care Community

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Don’t THINK Things Could Get Any Worse For My Alzheimer’s Dementia Suffer Dad.

6 Replies

Feeling quite sick 🤢 now my dad is now completely blind.

Don’t think things could get any worse for him really.

The more a read the sicker angrier am.

alzheimers.org.uk/sites/def...

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6 Replies

Hi JeffAjaxSmith,

So sorry to hear of your dad's recent deterioration and blindness.

You are right. Things couldn't get much worse for him and the only saving grace is that he has you to care for him, and you certainly do all that you can. You are a true champion on his behalf and get him as much help as you possibly can.

Unfortunately it is the nature of your dad's disease that the only outcome is for things to increasingly get worse, and they have got worse in such an unpleasant way for him, making your job of looking after him even more essential.

It's quite true that life's not fair and that can make anyone frustrated and angry. But try to channel your anger into the energy you need for the wonderful caring you provide for your dad. He needs you even more now and anger's useless when it can't change his situation. I hope you will feel supported by the members of this forum in all that your dad, and you are having to go through. Very best wishes to both of you and I wish you both strength and courage through the days ahead.

in reply to

Hi callendersgal brakes my heart really .... am angry I have had to fight tooth nail for my dad to be treated like a human.

I have found people generally talk over Dementia Alzheimer’s Suffers like the not there rather than too.

Hospitals was particularly bad for the chronic neglect ... but I can’t dwell as like you say should cherish all time have left with my dad and not let things get in the way of that.

I look at him thinking how brave he is really never complains AND thank full even to people who have wronged him ... even tho he don’t know how to express him self .. he must be sick coz I could never do that.

I think that’s where my anger frustration comes from BUT can’t let it get in the way.

Thanks for reply support

sassy59 profile image
sassy59

Oh JAS how very sad and on top of all you’re problems too. Your poor dad, that’s truly awful.

What will happen now? Thinking of you and your family. Take care of yourself please. Xxxxx

Paparoachgirl profile image
Paparoachgirl

I am so sorry to hear your dad has now gone blind. Alzheimer's has to be the cruelist disease. You are caring for him that makes it difficult for you but he knows youre there and a familiar voice can be such a help for him. Reading to your dad and going through things he has gone through in the past will help him to remember. He might like a particular book that you could read from or he had a hobby that you could talk about. It's very important to keep communication open but I know it can be difficult when they can find it hard to concentrate. At the end of the day you are doing a fantastic job but don't neglect your own health and any support you can get,get it because you need a strong network around you to help with your dad. Stay strong x

Hellebelle profile image
Hellebelle

Hi, so sorry to hear. It's so distressing for you as a carer. I hope it helps to know that there are some lovely caring people on this forum who really understand what you are you going through. My dad has a condition that is robbing him of his dignity in the most cruel way. Life can be so unfair. My dad was a real gentle, kind and intelligent man. He can barely speak now or swallow his food. I really feel for you but your dad has some thing precious in that you really care for him.

karools16 profile image
karools16

Your post really moved me to tears. Do you have the organization 'Talking Books' near you? It's the newspaper/other been read aloud by readers. Playing music/cd/etc used to help, at times, when I was a live-in carer, caring for ladies and gentlemen with dementia. You need to look after YOURSELF, so that you can care for him. Sending you warm hugs and kind thoughts. x

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