I have attended many Continuing Health Care (CHC) multi disciplinary team (MDT) meetings to go through the Decision Support Tool (DST) during my working career - apologies for the number of acronyms
Just recently, I have been reminded about how emotionally draining this can be for loved ones attending such meetings and how intimidating it may feel.
People aren't always made aware beforehand of the potential length of time a meeting may take - anything from 2 - 3 hours, but also how hard it can be when listening to every aspect of a loved ones needs being discussed in great detail. Although, it is essential to ensure the health professionals get the right information, it is difficult for the family to hear every detail.
My advice, if invited to attend, is to take someone with you. A friend or an advocate who is willing to be a support for you. A friend or someone who knows you well will pick up on things and know when if you need to take a break or are struggling to ask a question.
In most instances, the person chairing the meeting, will say at the beginning you can take a break at any time, so don't be afraid to do so, it is a sincere offer. They will be sympathetic to the situation and do appreciate it is difficult for families. It is easy for professionals to get complacent when they attend meetings daily, but they really don't mind being reminded when people need to just take 5 minutes.
I would be interested to hear other peoples experiences or tips when attending CHC meetings