I Have Kidney Disease: Hello, I'd like to... - C3 Glomerulopathy

C3 Glomerulopathy

300 members97 posts

I Have Kidney Disease

RoadRunner44 profile image
2 Replies

Hello, I'd like to introduce myself, I am an active lady of 74 and I have a number of health problems, one being kidney disease and prediabetes, and a lung disease called bronchiectasis.

I am trying to find out as much as I can about the kidney disease and possible side effects of having it. I want to try I can try to inform myself so that can continue to lead an active life. I am experiencing neurological pains in my hands and feet. I understand this could be linked to possibly the kidney disease but also the prediabetes. Is there anyone on the Forum who has similar sensations in their hands and feet and how are they dealing with it. I have tried rubbing in magnesium oil which doesn't help. I have ordered some compression socks to see if they can help. My lung consultant has taken me off my long term antibiotic - colomycin for three months to see if it might have caused these side effects.

Written by
RoadRunner44 profile image
RoadRunner44
To view profiles and participate in discussions please or .
Read more about...
2 Replies
DavidF_NKF profile image
DavidF_NKFPartner

Hi Road Runner,

Thank you for your post. I want to suggest that you check out the NKF CARES group. This is a free phone support service of the National Kidney Foundation. You can either call 1.855.NKF.CARES (1.855.653.2273)

or email nkfcares@kidney.org. Also, if you have not done so already, please check our website kidney.org, and go to the "Patients" tab, then choose "A to Z Health Guide", where you will find tons of information on kidney disease. Let us know how you make out.

RoadRunner44 profile image
RoadRunner44 in reply toDavidF_NKF

Thanks for the information. Will follow it up.

Not what you're looking for?

You may also like...

treatment for my husband

my husband was diagnosed with MPGN in 1999 at age 22. He has been treated with prednisone, BP meds,...
Dldant profile image

Eculizumab: Expert opinion is needed - What is a correct way to get off Soliris?

Dear experts, my son has DDD and have been treated with Soliris since January. He feels much...
MPGN-C3G profile image

Immuno deficiency with C3G

Hi HealthUnlocked, I have a question regarding C3G and immune system function. My son has C3Nef...
KatrineM profile image
Ambassador

Deletions of the genes CFHR1 and 3

My son is 7 and has DDD: C3 is extremely low, sC5b-9 is extremely high, C3Nef is positive and he...
MPGN-C3G profile image

interested if anyone with C3g also have APL and or drusen?

I have got APL and due to have a biopsy to confirm C3g . I also have drusen and wondered if anyone...
Snut profile image

Moderation team

DavidF_NKF profile image
DavidF_NKFPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.