I Have Kidney Disease: Hello, I'd like to... - C3 Glomerulopathy

C3 Glomerulopathy

I Have Kidney Disease

RoadRunner44 profile image
2 Replies

Hello, I'd like to introduce myself, I am an active lady of 74 and I have a number of health problems, one being kidney disease and prediabetes, and a lung disease called bronchiectasis.

I am trying to find out as much as I can about the kidney disease and possible side effects of having it. I want to try I can try to inform myself so that can continue to lead an active life. I am experiencing neurological pains in my hands and feet. I understand this could be linked to possibly the kidney disease but also the prediabetes. Is there anyone on the Forum who has similar sensations in their hands and feet and how are they dealing with it. I have tried rubbing in magnesium oil which doesn't help. I have ordered some compression socks to see if they can help. My lung consultant has taken me off my long term antibiotic - colomycin for three months to see if it might have caused these side effects.

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RoadRunner44
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DavidF_NKF profile image
DavidF_NKFPartner

Hi Road Runner,

Thank you for your post. I want to suggest that you check out the NKF CARES group. This is a free phone support service of the National Kidney Foundation. You can either call 1.855.NKF.CARES (1.855.653.2273)

or email nkfcares@kidney.org. Also, if you have not done so already, please check our website kidney.org, and go to the "Patients" tab, then choose "A to Z Health Guide", where you will find tons of information on kidney disease. Let us know how you make out.

RoadRunner44 profile image
RoadRunner44 in reply toDavidF_NKF

Thanks for the information. Will follow it up.

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