Posts - C3 Glomerulopathy | HealthUnlocked

C3 Glomerulopathy

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diapaglifozin

hi I am currently on ramipril to control my C3g but my docs are considering changing to diapagliflozin. is anyone on that? I'm specifically interested in...

hi I am currently on ramipril to control my C3g but my docs are considering cha...

Snut

•2 months ago

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brand new diagnosis

Hello! I’m brand new to all of this! Just diagnosed last night but doc still needs more labs to know more etc. a question that has come up for me while I’ve...

Hello! I’m brand new to all of this! Just diagnosed last night but doc still nee...

ematthews81

•4 months ago

1 Reply

C3G help

hi my partner has been told he has C3G. He’s now stage 4 Last GfR 18. What I would like to know is how this affects people My partner has not had many...

hi my partner has been told he has C3G. He’s now stage 4 Last GfR 18. What...

Dollys-4

•4 months ago

5 Replies

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c3 7 year old

Hi, my son is 7 and in the middle of being diagnosed with c3 just waiting on final biopsy results but hospital is starting him on MMF next week. He has really...

Hi, my son is 7 and in the middle of being diagnosed with c3 just waiting on fin...

Lb34

•9 months ago

1 Reply

C3G kidney disease

Hi My partner has kidney disease and has been told it’s rare. C3G. He’s stage 4 Does anyone know anything about C3 thanks

Hi My partner has kidney disease and has been told it’s rare. C3G. He’s stage 4...

Dollys-4

•11 months ago

2 Replies

expert opinion

I am curious if there are C3GN patients that don’t have a low C3. Since being dx’d with Sjogrens, back to maybe SLE (after a second opinion read on my biopsy...

I am curious if there are C3GN patients that don’t have a low C3. Since being ...

CherylJR

•1 year ago

3 Replies

ckd stage 3

I was diagnosed with Iga nephropathy 25 years ago through having a biopsy, first sign was my eyes woke up to a cloud of smoke iritis which they couldn’t stop...

I was diagnosed with Iga nephropathy 25 years ago through having a biopsy, first...

Mary-Louise

•1 year ago

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interested if anyone with C3g also have APL and or drusen?

I have got APL and due to have a biopsy to confirm C3g . I also have drusen and wondered if anyone else had the same

I have got APL and due to have a biopsy to confirm C3g . I also have drusen and ...

Snut

•1 year ago

5 Replies

treatment for my husband

my husband was diagnosed with MPGN in 1999 at age 22. He has been treated with prednisone, BP meds, ace inhibitors since diagnosis they now think it is C3G. I...

my husband was diagnosed with MPGN in 1999 at age 22. He has been treated with p...

Dldant

•1 year ago

10 Replies

treatment for Sheri for C3G

hi my wife , 66 years old has C3G a was diagnosed 8 months ago. She was first put on predizone which she of course had horrible side effect from. Now she is...

hi my wife , 66 years old has C3G a was diagnosed 8 months ago. She was first p...

Chewiboy1

•1 year ago

2 Replies

School with prednisone and Cellcept

Hello, my daughter (19 years old)has DDD and will need to start winter Prednisone and Cellcept. Currently she only takes Ramipril. Will she be able to...

Hello, my daughter (19 years old)has DDD and will need to start winter Prednison...

Sibane

•2 years ago

1 Reply

Treatment characteristics desired by renal cell carcinoma patients.

I am trying to learn more about health issues that are priority for the patients and their expectations for possible treatments. I am conducting series of...

I am trying to learn more about health issues that are priority for the patients...

stage4RCCpatient

•2 years ago

1 Reply

Diagnosed with C3 Glomerulonephritis

I'm 61 yrs Female, i was diagnosed with high blood pressure from about 15 years, and i was taking medicines and the pressure since that time became stable, in...

I'm 61 yrs Female, i was diagnosed with high blood pressure from about 15 years,...

Abdelmalak

•2 years ago

11 Replies

C3G

my wife was just diagnosed with C3G. The treatment is presently 60 mg of prednisone and an ace inhibitor. She has lupus since age 23 and lymphoma since 2013...

my wife was just diagnosed with C3G. The treatment is presently 60 mg of prednis...

Chewiboy1

•2 years ago

1 Reply

Is rituximab safe? Thoughts on second opinions?

Hello, My name is Junior. My 18 year old brother was diagnosed a year ago with C3 Glomerulonephritis. Over the past year we have been moderating his BP with...

Hello, My name is Junior. My 18 year old brother was diagnosed a year ago with ...

Hopeforc3g

•2 years ago

8 Replies

Participate in Paid Research on C3G - InVibe Labs

Hello! I work for InVibe Labs and we are conducting a research study with patients and caregivers who have experience with C3G, IgAN, or aHUS. The research...

Hello! I work for InVibe Labs and we are conducting a research study with patien...

YB_inVIbe

•2 years ago

5 Replies

Advice needed

What blood pressure medication do you take?? My son has 6 different ones..Ramipril-Amlodipine-Bisoprolol-Doxazosim-Moxonidine & Hydralazine..nothing seems to...

What blood pressure medication do you take?? My son has 6 different ones..Ramipr...

Myboy

•2 years ago

2 Replies

Reoccurrence

Has anyone been transplanted and then had reoccurring C3G/DDD?? If so how soon after transplant?? Thank you x

Has anyone been transplanted and then had reoccurring C3G/DDD?? If so how soon ...

Myboy

•2 years ago

1 Reply

Results of COVID-19 Antibody Testing

I am a C3G patient. FYI/For what Its worth: I had myself tested for antibodies to COVID-19 on Friday, April 23 six weeks after completing the 2 shot Moderna...

I am a C3G patient. FYI/For what Its worth: I had myself tested for antibodies ...

Hidden

•3 years ago

3 Replies

I'm new here

I'm 77 and 1 1/2 yrs into a biopsy/immunofluorescence confirmed diagnosis of C3G (my kidneys were spilling small but increasing amounts of protein for several...

I'm 77 and 1 1/2 yrs into a biopsy/immunofluorescence confirmed diagnosis of C3G...

Hidden

•3 years ago

5 Replies

Is there a difference between Collapsing Glomerulopathy and C3?

My son, 17, was just diagnosed with collapsing Glomerulopathy after having had a kidney transplant in June of 2020. My doctor told me there is no known cases...

My son, 17, was just diagnosed with collapsing Glomerulopathy after having had a...

Shieldmaiden

•3 years ago

2 Replies

17 Year old with unknown kidney disease given transplant in June now has Collapsing Glomerulopathy

Hello, After finding out my son had an unknown kidney disease and stage 4 failure in late September of 2018 we worked fast to try to find him a donor. Luckily...

Hello, After finding out my son had an unknown kidney disease and stage 4 failur...

Shieldmaiden

•3 years ago

1 Reply

Share your experience

We are looking for someone with C3G who would be willing to share their experience with disease progression, diagnosis etc. in a 1-1 interview. If you are...

We are looking for someone with C3G who would be willing to share their experien...

KelliC_NKF

•3 years ago

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C3G

Namaste I am post renal transplant (8 years) with C3G (2.5 years), protin uria 2.5 mg per day. Creatinine increased to 2.2 mg, doctors asked to stop...

Namaste I am post renal transplant (8 years) with C3G (2.5 years), protin uria ...

173001

•4 years ago

1 Reply

Am I on the right site for CKD?

Hi. I am 66 years of age. Recently diagnosed with chronic kidney disease. My eGfr is 43. I am female, and already have several other health issues. What is...

Hi. I am 66 years of age. Recently diagnosed with chronic kidney disease. My e...

Hidden

•4 years ago

1 Reply

"Ask an Expert"

Hello i am 38 yo with no medical background( with G6PD deficiency) Since i was diagnosed with C3 GN (first due to infection on GI ,later the diagnosis changed...

Hello i am 38 yo with no medical background( with G6PD deficiency) Since i was ...

ker434

•4 years ago

5 Replies

Compilation of the Latest Clinical Information on COVID-19 for Kidney Patients

Hello Everyone, NKF has assembled the latest interdisciplinary information on COVID-19 related to kidney patients. Please paste this link into your browser to...

Hello Everyone, NKF has assembled the latest interdisciplinary information on CO...

DavidF_NKF

Partner•4 years ago

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NEW INFORMATION ON COVID-19 AND KIDNEY PATIENTS

The National Kidney Foundation is continuing to develop information on COVID-19 as it relates to kidney patients. Please paste these links into your browser...

The National Kidney Foundation is continuing to develop information on COVID-19 ...

DavidF_NKF

Partner•4 years ago

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INFORMATION ON COVID-19 FOR KIDNEY PATIENTS

Kevin Longino (NKF’s CEO) addresses some of the questions we’re receiving from patients and care partners regarding continuing in-center dialysis and...

Kevin Longino (NKF’s CEO) addresses some of the questions we’re receiving from p...

DavidF_NKF

Partner•4 years ago

1 Reply

Do I keep her isolated or not

My daughter is 8 and has C3 glomerulonephropathy she’s been on prednisone for two years and is set to come off them this April . She leaks 3+ blood and 3+...

My daughter is 8 and has C3 glomerulonephropathy she’s been on prednisone for tw...

JessM27

•4 years ago

7 Replies

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Posts - C3 Glomerulopathy | HealthUnlocked

C3 Glomerulopathy

diapaglifozin

brand new diagnosis

C3G help

c3 7 year old

C3G kidney disease

expert opinion

ckd stage 3

interested if anyone with C3g also have APL and or drusen?

treatment for my husband

treatment for Sheri for C3G

School with prednisone and Cellcept

Treatment characteristics desired by renal cell carcinoma patients.

Diagnosed with C3 Glomerulonephritis

C3G

Is rituximab safe? Thoughts on second opinions?

Participate in Paid Research on C3G - InVibe Labs

Advice needed

Reoccurrence

Results of COVID-19 Antibody Testing

I'm new here

Is there a difference between Collapsing Glomerulopathy and C3?

17 Year old with unknown kidney disease given transplant in June now has Collapsing Glomerulopathy

Share your experience

C3G

Am I on the right site for CKD?

"Ask an Expert"

Compilation of the Latest Clinical Information on COVID-19 for Kidney Patients

NEW INFORMATION ON COVID-19 AND KIDNEY PATIENTS

INFORMATION ON COVID-19 FOR KIDNEY PATIENTS

Do I keep her isolated or not

Search posts

Pinned Posts

Latest poll

How long have you been living with C3G?

Topics

Archive