Cystic kidney disease (bws): Hi all, my son... - BWS Support

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Cystic kidney disease (bws)

charlilriley profile image
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Hi all, my son turned 2 last friday, on monday we were told he has cystic kidney disease (due to the bws) he already had bilateral hydrophronesis and up until may no cysts, some were found may and doubled size and quantity by september, both kidneys, terrified....all info i could fibd said usually much later in life and usually result in dialysis and transplant.! Anyone experience this so early on and what happened please??

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